Wow, what are the ages of your kids? I get nervous everytime one of my boys (ages 2, 12 and 16) says their stomach hurts or they have D. My 16 year old son has digestive issues more than is normal but I have been reluctant to get him tested for anything because I do not want to make it impossible for him to get insurance later on, and he now really has his heart set on joining the military as soon as he is out of school and I know they won't take him with that diagnosis. He does not have pain and has never been sick but we have a strong family history starting with my generation, out of 5 siblings 4 of us have IBD, one UC and 3 crohns, my brother was diagnosed at 17(now27), my sister with UC at 19(now35), my sister with crohns at 20 (now 21) and I was sooooo lucky to make it to 30(now 33). My GI said that though you are more likely to get it if a sibling has it it is extremely rare for that many in one family to get it. I get sick and become obsessed with finding information then I feel better and let off, I have never done the elimination diet because I have no self control, however there are a few foods for me that I know cause problems, but others don't have problems with those foods, everyone is different. I recently discovered that sugar is really bad for me (I have read this many times over the past couple years but was determined it was not an issue) like I said I have no self control so I have not eliminated sugar but I have cut way back and do feel much better. Somewhere on here is a list of all the different medications and I think about supplements and probiotics, but I do not remember where to find it, you could try the search or wait a bit and someone may post it for you. There is a lot of helpful info on here, some of the stuff can be scary just remember everyone is different and some people get sicker than others, noone in my family has had to have surgeries and none of us have gone to any of the extreme drugs, we do fairly well on diet, though we are all different in what we can eat, all of us have found we have problems with processed foods and lots of additives. Many people have success with probiotics but they don't seem to do a thing for me personally, I have read several good books that really explain the connection between food and inflamitory diseases, unfortunately I do not keep a list and cannot remember the names, One that I liked was why doesn't my Dr know this, By David Dahlman??? The book is good but if you take everything he recommends you are looking at $300 a month in supplements, however he is not just pushing his own products he also tells you other places you can find the same things. Check out your library, you could spend hundreds of dollars on books and get nowhere, It can all be very frustrating and confusing but hang in there, someday someone will figure this out, and it probably won't be a Dr.
Dx CD Oct '06 mom of 3 boys
Current meds: prednisone, Lialda, probiotics, oregano, green tea, vitamins, Fish oil, Past Meds:Asacol, entocort, flagyl, cipro