While my daughter was on one pill of Entocort (3 mg), she started taking 4.5 mg LDN. Then used the LDN to taper off Entocort, which she had been on for years. The most notable result of the LDN, aside from helping her taper off Entocort, was that it reduced her sed rate from 8 to between 2-4.
No side effects, except for the first two weeks -- after a few days on LDN, she started feeling very fatigued when she came home from work...went straight to her room for a nap (and this is somebody who almost never takes naps). She also had no appetite, some gas, and rumbling in her abdomen. But these side symptoms settled down by the end of the second week. We assumed her gut was getting used to the LDN - perhaps it was killing off bad bacteria?
She has been on only LDN for at least a couple of months. Also continues to follow the SCD diet, except for two foods -- she does eat rice and potatoes, which are not allowed on SCD.
It looks like she might be in remission but only a colonoscopy can tell for sure -- not surprisingly, she is not jumping at the chance to do a scope.
Daughter (22) Dx'd Crohn's 3/06. Misdiagnosed for two years, including by top pediatric Crohn's specialist as stress. No symptoms for the past two years. Recent colonoscopy shows stricture gone but still two spots of inflammation in TI. Used LDN to taper off Entocort. Was on Entocort since April 06. Never had D. 4.5 mg LDN, SCD multivit, homemade yogurt, 5000IU vit D3, 500 mg calcium, 27 mg iron, monthly B12 shots, daily oral B12 1000. SCD diet modified to include potatoes and rice.
Post Edited (njmom) : 1/3/2010 3:44:30 PM (GMT-7)