Post Edited (j_web) : 1/4/2010 10:15:08 PM (GMT-7)
I know just what you are going through. I have had a mild case for most of my life have CD for about 20yrs now). I have been on every type of medicine for CD and have had a bad reaction to every single one with the exception of Remicade. I just started this one. First two infusions were like Heaven but after the third...I feel like I am in a flare again and that the infusion didn't "take". This is leading me to believe that once again another failure.
What you may want to do is go online and look for some clinical trials. Also talk to you doctor to see if he can get you in one. I almost went to one but I needed to take a bioligic and fail on it first. Once I know Remicade isn't working..I am going to try getting into a study again.
The one thing I have learned is to not let the failures get to me. If something doesn't agree with me..I take that as a sign that it wasn't meant to be and try again with something else. I know I have very limited options now but there is always an option. Good luck and feel better. Also know..you are not alone.
Post Edited (pb4) : 1/5/2010 12:11:11 PM (GMT-7)