Hi! New here and I already feel welcome.

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Regular Member

Date Joined Dec 2009
Total Posts : 70
   Posted 1/5/2010 6:09 PM (GMT -7)   
I have been reading on this forum and I am suprized and relieved to see the support that is given to all and by all. I would like to say Hi to everyone. I was dx with crohn's in 10/2008 and I still have many questions... The first is about entocort and knee pain and mid back pain, Dr says no relation ship but the knee and back pain only started a few day days after starting it. the back pain seems to have gone but the knee pain creeps up out of nowhere. Has anyone heard of this? I have also been on pentassa for about 4 months, it only seems to minimize the symptoms. The only other change to meds, diet or life style was that I started on inj. B. Thank you in advance for any advice or help that anyone can offer.
Diagnosed Endometriosis 1998, Crohns 2008
Drugs: Pentassa, Entocort, B inj

Concerned Mom for son
New Member

Date Joined Jan 2010
Total Posts : 2
   Posted 1/5/2010 6:24 PM (GMT -7)   
Hi Jesse (seems like we're the only 2 here right now?)
I am totally new to this whole chat thing (56 yrs. old and not very computer savvy).
I have a son who is 26 yrs old that was diagnosed with Crohn's at the age of 8. Has had 2 resections and an ileostomy for 1.5 years. Has had a lot of problems since the ileostomy mainly with dehydration. He is currently in the hospital with possible gall stones and had his picc line infected. Now has a Central Line in. Never seems to get a break but has a great attitude.
I know my son, Jason, has had a lot of joint pain (back and knees included) but I believe that was due to his prednisone he took for so many years. Wish I knew
about entocort. Bet somebody will offer advice on this.
My hopes are finding out how a reversal of ileostomy have helped or hindered someone that has had it done. We are hoping my son can have this procedure in the near future.

Regular Member

Date Joined Oct 2009
Total Posts : 253
   Posted 1/5/2010 6:30 PM (GMT -7)   
I actually had joint and back pain while on pentasa that has minimized since I have been off of it. I was previously on entocort with no joint or back pain, and I'm currently on prednisone and imuran with significantly less pain than I experienced on pentasa.
female 19, diagnosed crohns december 2008
entocort/pentasa previously, now prednisone & imuran, probiotics, calcium w/d, digestive enzymes & prenatal multivitamin

Regular Member

Date Joined Dec 2009
Total Posts : 70
   Posted 1/5/2010 6:43 PM (GMT -7)   
Concerned Mom for son: Hi...I have not had any sx's so I wish I could help but I am sure that if anyone knows they will let you know. I wish you and your soon the best....

aickandlucky: I will have to look into the pentasa being the cause, thanks.
Diagnosed Endometriosis 1998, Crohns 2008
Drugs: Pentassa, Entocort, B inj

Concerned Mom for son
New Member

Date Joined Jan 2010
Total Posts : 2
   Posted 1/5/2010 6:45 PM (GMT -7)   
Thank you for the words of encouragement Jesse. It helps just knowing there are others with same issues that are so understanding and helpful

Veteran Member

Date Joined Dec 2009
Total Posts : 681
   Posted 1/5/2010 11:16 PM (GMT -7)   
Before I was diagnosed with crohn's I had the worst joint pains, especially the whole hands and wrists and both knees. Was told by my gastro-enterologist what I had was Crohn's arthritis which some patients get but not all. Prednisone helped control the pain some. When I went on Remicade it went away for the first 6 weeks. I get Remicade every 8 weeks, so it comes back for the last 2 weeks. Concerned Mom for Son, if I may! This is a forum or message board not a chat room. There's a link to chat rooms near the top of this screen in small type if you want to try but not many people do. In a forum people will be online at various times of the day, from all around the world. Jessies girl started this message and you and sick and lucky all posted comments around the same time but you'll notice I'm posting over 4 hours after you. Some posts can go on for days or weeks. when your interested in a post add your comment if you want but rember the topic(subject) heading so you can follw what's happened the next time your on. Example this topic is "Hi! New here and I already feel welcome" Good for you trying to help your son with compuers. They can be intimidating but stick with it you'll learn. I hope I helped! Lastly if you go down further on the lists of diseases and conditions page ( where you found Crohn's Disease listed) you'll find another forum on ostomies which I'll bet is what you need. Good luck and don't give up this web site is excellent for learning many things and getting different peoples many experiences. Regards Grandpa to 2.
Male with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003.Had a gall bladder removed Nov. of 2009. Currently on 5-asa Salofalk ,Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. Entecort, Imuran and Prednisone in the past.

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 1/6/2010 2:06 AM (GMT -7)   
Hi and welcome, You have found the best place to talk about Crohn's. There are alot
of wonderful people here.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on and Humira. B-12 injection once a month.
Also diagnosed with Rheumatoid Arthritis.

Veteran Member

Date Joined Dec 2008
Total Posts : 947
   Posted 1/6/2010 4:47 AM (GMT -7)   
Hi and welcome, this is a wonderful forum with great people to talk about Crohns.
Diagnosed with Crohns in 2001
First and hopefully last Ileocecectomy 2/18/2009

Medications:Humira,  Asacol, FolicAcid,  Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

Living a Great life with my Wife and my two Chocolate Labs
Hunter & Hailey.
I love them dearly.

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 1/6/2010 6:11 AM (GMT -7)   
Welcome to both of you! You've found a great forum to help figure things out:)

Concerned Mom: I just wanted to mention that Healing Well has an Ostomies Forum (you can go to Quick Jump and click on it) that might be able to answer some of your reversal questions...many of us there have Crohn's, too.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 1/6/2010 7:57 AM (GMT -7)   
Hi I too would like to add my welcome to both of you. You have found the best Crohns forum out there. Jessie's_girl I am so glad that you have found support here. I am sure you will both get alot out of this forum, and we look forward to hearing more from you both.

Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Mar 2009
Total Posts : 1118
   Posted 1/6/2010 11:15 AM (GMT -7)   
Hi to both of you and welcome aboard! Jesse,s_girl I had a lot of joint pain in my lower back and knees when i was on Pentasa since coming off it they have stopped (iam waiting to go on to something else)not sure if it is all down to pentasa or that im getting old!!!!

Concerned for son- Iam due my reversal of my ileostomy in the next few weeks (can't come quick enough!!) as Ohio76 mentioned pop over to the ostomies forum some of us use that too just click on forums & chat above and scroll down to ostomies.

Look forward to speaking with you again x Bev
Diagnosed at 13 now 42
Reversal of temp stoma scheduled 27th Jan 10 :-)
Meds: Iron syrup,Loperimide,Folic acid & Citalopram 60mg (for Anxiety.)

Never be afraid to try something new;
remember amateurs built the ark, professionals built the Titanic.

Regular Member

Date Joined Dec 2009
Total Posts : 70
   Posted 1/6/2010 5:48 PM (GMT -7)   
Thanks everyone! ( big smile!) I am SO glad that I now have somewhere that I can ask questions with out any stigma!
Diagnosed Endometriosis 1998, Crohns 2008
Drugs: Pentassa, Entocort, B inj

Elite Member

Date Joined Jan 2005
Total Posts : 24909
   Posted 1/6/2010 6:56 PM (GMT -7)   
I also would like to extend a warm welcome to both of you..i see you have already got the idea of the caring support and info these great members have to offer........I KNOW that i have been in many of the forums due to all the health issues i have and it is so great to get the support and others educated .personal experiences first hand..i have come with health issues family issues and alot more over the years..it never ceases to amaze me how much the ppl here do care and will help you out if they can..there is always someone that feels .is going thru.is as bad off as you n can relate,,thats what makes this place n the ppl so great in my books...Stay with us..lyn
                                Co Mod for Crohns, Anxiety/Panic, Alzheimers
   Crohns..Pyoderma gangrenosum,..Anxiety / panic..Fibromyalgia,,Neuropathy...Deaf...Seizures
                        I DONT COMPLAIN...OTHERS ARE WORSE OFF THAN I AM                                   
                                Donate to www.healingwell.com.
                        HW FRIENDS N FAMILY TRULY DO UNDERSTAND                                                 

Veteran Member

Date Joined Jan 2003
Total Posts : 6131
   Posted 1/7/2010 1:49 AM (GMT -7)   
hey do you know rick springfield!!?? ;0)


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