I am the mom of a 15 year old with Crohn's. He was diagnosed when he was 11. Unlike you, he does not want to talk to anyone about this disease and is pretty much in denial about it. I think your attitude is so much healthier.
In our town I actually know of 5 - 10 kids his age with IBD. They go to school and particpate in many activities. My son does lead a normal life and plays ice hockey year round. He is also very close to becoming an Eagle Scout. He just misses a day of school every 6 weeks for his Remicade treatment. But anyway, this group of kids (my son was not involved) organized a fundraiser for the CCFA that they ran when they were in 8th grade. As part of it, there were posters up around school educating people about IBD. I'm not suggesting you go so far as anything like that, especially since you are not in school, but maybe you could educate your friends on what you are going through so they can be there to support you.
Please do not get discouraged. When Ben was on Prednisone it was the hardest time for him. Hopefully your disease will get under control soon and you'll be able to wean off of it. Also know that it may take some time before you find the medication that is going to get you into remission. We tried different medications and combinations of medications for 3 years before we got to this point where I can say that Ben is doing really well - lots of energy, feeling great, and growing (!). And during that time he got more and more frustrated as each medication didn't work. I think we're used to thinking that doctors have all of the answers, but there was a lot of trial and error in the process.
It also might help you to keep a food diary. I know there are certain foods that will send Ben right to the bathroom. A food diary will help you try to pinpoint those foods.
So, is there a children's support group run by the CCFA in your area? If so, that would help you find other teens in your area with IBD. Or maybe your GI could help in that regard. I know our GI asked Ben if he was willing to have other teens contact him to talk about the disease (he said no). But maybe your GI could give you a name or two (with their permission, of course). Also, I see that the CCFA has a link to a website for teens with IBD. The website is
So sorry to hear about your mom. I hope everything turns around for you both soon.
Nancy (son Ben,15,CD dx 3/06; double Remicade every 6 weeks, probiotic, multi-vitamin)