Question about Proctocolectomy

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Date Joined Mar 2009
Total Posts : 452
   Posted 1/6/2010 2:41 PM (GMT -7)   
Has anyone had a Proctocelectomy?  I was wondering when they remove the rectum, do they always remove the colon?  My imagination is running away and I am scaring myself right now.  I have been having pain in the rectal area and in the last 2 years I have developed CD in the rectal area and it just keeps getting worse.  So of course I keep thinking that they are going to remove it..but from what I have been reading, the colon also comes out and they create a stoma in your abdomen.
Just wondering if anyone ever had another rectum created from the colon or if it is just impossable. 
36 yr old Male with Crohn's Disease since '88 - No Surgery yet
Been on almost every type of drug with bad results
Remicade since Nov 2009
Prilosec 20.6mg - 2x a day
Multivitamin daily

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 1/7/2010 6:59 AM (GMT -7)   
JavaJay~from my understanding 'colectomy' is the removal of the colon or part of I think it would depend on your condition and where your disease is if they can leave most of your colon. I am not sure about where they can stop for the rectum, tho, and I've never heard of being able to 'relocate' the rectum. Those are some good questions for your C/R Surgeon (find the BEST one in your area or travel to one if you can!)

I did have a proctocolectomy (w/ileostomy) with the removal of my entire colon but I do know people who've had their rectum removed and now have a colostomy. There are some definite benefits to a colostomy (irrigation is one) depending on which part of the colon your stoma is formed from.

I would suggest asking your question on the Ostomies Forum, too (easy through 'quick jump')...there are many knowledgeable folks there!
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