I'm Michelle, I used to come onto this forum quite alot when I was first diagnosed but as time went by, I tried to manage by myself and depression and lots of family happenings got the best of me.
I think the last posts I wrote on here were about after I had my resection about 2 years ago.
Since then my CD has improved although still had some flare ups in between, and am now trying to control all my medication etc.
Although some days it seems hard to do, when I'm stressed especially, I have good days and bad days, but have to admit that I dont see myself in as many embarrassing situations (having accidents in shopping centres etc) as much as I used to.
I have been seperated now for almost 2 years, I dont think my "ex" (or hopefully soon to be ex!!) really understood what I was going through at the time and didnt make it any easier on me! Since the seperation I met a really nice guy that actually cares and just knows when I'm having a bad day and is extremely helpful which takes alot of pressure off me.
I am still battling with the dreaded Diarrhoea but I suppose thats one thing that will not change for me, regardless of what medication I take .
I think the biggest problem for me atm other than the constant episodes of having to take myself off to the toilet is the itchiness I'm still getting, and I also have a hernia from the resection which on some days sticks out so much that I have had to buy a bigger size trousers for the waist to fit, as I can look about 8 months pregnant, especially when my stomachs not too good aswell.
I am currently not on any prednisone and havent been for about 16 months now.
Pentasa (4- 3x a day)
Cocodomols (prn but need to take them atleat 3 x a day to help with the Diarrhoea)
loperamide (prn- but seem to have to take them every day and atleast 8 a day!)
Questran or Colestramine as it is known in some places (now gone on to the Questran Light to see if it helps me better)
Levothyroxine (for thyroid)
Ferrous Sulphate (for anaemia)
B12 injections (every 3 months)
I dont think I've missed any medication...although my son sees me taking them and calls me a druggy!!!!
The one thing that I am uncertain about that the doctors seem to not say much on, is does a hernia affect CD, as it is where the resection was done, and one specialist did say that maybe part of the intestine was caught in the hernia??
And I sometimes when i cough too hard or am having a bad day I seem to get like a twisting feeling like my insides are turning over???? Dont know if anyone else has experienced anything like that too!
The doctor said as long the hernia is not too uncomfortable it is not needed to be operated on, but at what point would you call a hernia when you have CD, and your stomach bloats up already not uncomfortable?!
Its good to be back around, in a way I think I missed reading the posts, and knowing that there are people out there with the same things, and sharing experiences,opinions and knowledge.
Thanks to everyone in the past who helped me through when I was first diagnosed and thank you to those in the future for the posts you all write, whether it be subject related or not!