Worst 6 months any suggestions??

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water man
New Member

Date Joined Dec 2009
Total Posts : 7
   Posted 1/10/2010 7:18 PM (GMT -7)   
My last surgery was in September 2008. I find myself depending on gas-x (taking it at least a couple times a day.) I have been on Humira since January 2009.

The problem has been the last 6 months -- I have been running to bathroom 10-15 times a days sometimes not making it and sometimes just barely making it. Never in my life have I had it so bad. My weight is down now about 15 pounds. I was diagnosed as an anemic and had to have an IV of iron. Food tastes lousy to me. Nothing tastes good at all. The humira I am taking is making my skin itch and break out in a rash. I just don't know where to turn anymore.

Has this happened to anyone else? Does anyone have a suggestion? I have an appointment at the end of January and I want to have some new ideas to approach my doctor with.

Thanks for any advice or help you can offer.
had crohns disease since 1977 ---4 surgeries and currently on humira

Regular Member

Date Joined Nov 2009
Total Posts : 205
   Posted 1/10/2010 8:45 PM (GMT -7)   
Long shot - have you been tested for c-diff?
When I was that bad it was an undiagnosed c-diff infection.  Flagyl/vancomycin is the stuff for that.  Sometimes those antibiotics can help with problems regardless of the c-diff.  Probiotics also help me a LOT with gas.  I use a brand called Flora-Q2 http://floraq.com/index.html
Hope you feel better soon.

CD since July 2007 - prenatal vitamins + extra vit. D, vit. C and iron, fish/flax oil, probiotics

Following excellent Omega-3 diet as per James Scala's 'The New Eating Right for the Bad Gut' - got me out of a flare.

Regular Member

Date Joined Jan 2010
Total Posts : 222
   Posted 1/11/2010 2:56 AM (GMT -7)   
You sound very similar to me after my surgery, I could not stop myself having to run to the toilet and constant accidents. I take iron tablets which do stop me a little, as well as constant loperamides (immodium) which i sometimes take between 10 and 15 a day (8 max for normal peolple!, but my specialist said i could take up to 32 a day)
I also got put on cholestramine (questran) which also helps with the constant D, and as a last resort if all else fails I have an emergency bottle of kaolin & morphine as well.
Even after 2 years of having surgery I still have to go to the toilet frequently and sometimes it doesnt matter what I eat, but guaranteed within an hour or two hours of eating I am on the toilet. I am not on humira but still get the itches, which the cholestramine is supposed to also help with, and usually a couple of weeks before \i go for my B12 injection i constantly itch.
Are you on any form of B12? And maybe ask your doctor about questran as well, it does help to bind things, it has not been completely successful for me yet but who knows, what doesnt work fully for one person could work with another!
I can fully relate to your problems and understand how you feel, I got so bad that I wouldnt venture out the house in case I had any embarrassing episodes, I hope it all comes right for you, and please let me know what your doctor says, as I would be interested to see if there would be anything my doctor could do for me in the same regard as well.
good luck!
Michelle 40 years old
Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
Bowel resection 2005
medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
loperamide 2mg (prn - take as many as 10-20 a day)
calcium tablets
Ferrous sulphate(anaemia)
levothyroxine (thyroid)
questran light (3 sachets/day)

water man
New Member

Date Joined Dec 2009
Total Posts : 7
   Posted 1/27/2010 7:18 PM (GMT -7)   
I went to the doctor yesterday . He thinks with me losing 11 pounds since october and the pictures from the push endoscope and colonoscopy in july that I have another blockage where the large and small meet. Now I have to Go for a Baurim xray on Monday .( fun-fun) I just Don't get it anymore . My blockages are getting closer in time every year. He told me the camera pill would get stuck in my intestines , I would rather try that ,then the barium. I asked the C-diff question but he felt I did not have that . So i guess time will tell. Not looking foward to Monday and not looking foward to another sugery , the down time just keeps getting longer the older I get . Any comments would help...Thanks
had crohns disease since 1977 ---4 surgeries and currently on humira

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