So I just signed up on this forum this evening and I have already gained so much valuable information. I can't believe that I haven't come across this before. For the last week or so I've been at the beginning stages of another flare up and kept telling myself to get online and look for some more information. I have been putting it off, not only because I've been working 12-14 hours a day, but also because I really didn't expect to find any new earth-shattering advice that was going to make my life oh-so-much better. Little did I know there was this place where other dire souls like myself were handing out earth-shattering advice for free!!! I feel ill-equipped with my very little knowledge but I am always more than willing to give out free advice, whether anyone wants it or not.
My very familiar sounding story is as such: about
a year and a half ago I had been having some stomach problems, mostly just the usual sick feeling with revolving bouts of diarrhea and constipation. It didn't seem very surprising, stressful career, working long hours, not following good eating or excercising habits, blah blah. One fateful Friday as I was leaving work, BAM! Literally, next thing I know I'm on the floor so sick I can't even get up. I'm thinking stomach flu, this is followed by bleeding (never had that before) finally to the ER (more than 24 hrs. and much pestering by my sister later). ICU, almost into cardiac arrest, many pokes and prods and a week later I come out with a diagnoses of food poisoning. The only problem is that I'm still having a lot of pain, and bleeding, and sickness. So we'll just fast forward past a lot more poking, prodding, testing, misdiagnosing, and a few Dr.'s later they concur that I have some kind of colitis. So my tests kept showing up as Ischemic Colitis, which usually is in people in their 70's and I'm in my 30's so the Dr.'s say it's from being dehydrated and the tests were inaccurate. (All of them?) Fortunately for me, my colon is very stubborn and doesn't like to be called a liar, so after another pretty bad flare up, (in the exact same area) another hospital stay, and more Ischemic Colitis results it was decided that the results probably weren't inaccurate that many times. The problem is Ischemic colitis doesn't show up in the same area and it's a blood flow problem but the angiogram shows that I don't have a blood flow problem. So anyways, this time it did enough damage that I had to have a resection (June of 09). They took about
13" of my Sigmoid, which went pretty well for the most part. I was recovering well until about
a week and a half later when I got a blockage in my small intestine and had to go back in for emergency surgery to fix that. That put me behind as far as recovery but all in all I was lucky and healed up well. After the resection the Dr.'s narrowed it down to Crohn's and I guess that has been made my official diagnosis. Since then I guess this is my second flare up, or maybe still the same one that I've been having since September, I'm really not sure. I started having some bleeding and really bad pain again in Sept. and went back in to the Dr. At that point I wasn't on any medication for the CD, I just had Lortab for the pain. I was given Bentyl, which I absolutely hated and would rather have Freddy Kruger ripping out my guts than take that. Now I'm taking Elavin and Lortab. Keeps the pain at bay and I've pretty much figured out what I can and can't eat. As long as I keep my regular diet and eating schedule I don't do too bad. So it's mostly just the pain and the bleeding now and the fact that I'm so tired all the time. Never used to need to sleep more than about
4hrs a night and now I will sleep 12 or more if someone will let me.
I have a plethera of other things going on too: ADHD so I am on Adderall XR 30mg, Anxiety I now take Celexa for that (Effexor before), Hypertension-Lisinopril, Chronic Migraines-Topomax 50mg daily and Relpax 40mg at the onset of one, Right now I'm taking 75mg of the Elavin at night and the Lortab 10-500's as needed in the day. (I also have the Lortab's for some compressed discs that I have in my back. Have deterioration between some of the discs that has baffled the Dr.'s because of my age and no history of injury or accidents. I am now wondering if it's from the CD because I've read that it can cause bone deterioration in Women??) I've had Cortozone Shots, A Nerve Burning Procedure, Physical Therapy, Decompression, and I own every device ever made for lower back problems.