Hi everyone, i have posted several times but never formally introduced myself. I am a 47 yrd male-married with 2 teenage boys. I have had crohn's for about 13 yrs. for the first 11 really never believed i had it even with a biopsy that confirmed crohn's. this was due to my only symptom being anemia. I was on asacol, then pentasa along with iron pills.. then everything changed. a routine colonoscpoy showed dramatic narrowing at the illeium and other spots. My GI doctor start me on cimzia. took that for about 12 months then had a blockage. was hospitalized for 6 days on high doses of predisone. was released in mid october.
Since then have had good days and bad days with the bad being horrible nausua, stomach pains mid and right side. Dr. started me on remicade, did point out is was worth a try. The frequency of the bads picked up and by week before christmas they did another CT scan. the good news-not worse. the bad news it had not gotten any better since the colonoscopy back 2 years ago. as the Dr said, none of the meds are working, the narrowing looks like scar
tissue on the CT (with barium) so the meds would never work. SO time for surgery given yuo are continuing to feel worse.
So on tuesday, they plan to take out 3 to 4 inches of large intestine and then 4 inches of small. there is anothe spot that they will take out but no sure how far away from the first one. so it either could be a two sections of 3 inches or up to a 12 inch piece. surgeon said 12 at one time was enough if there is good tissue to work with. All of that said, he will do open sugery due to a few complications i have:1) gut malrotation where my intestines are all out of place and 2) not sure of the second spot and want room to see it. I also take 5 different blood preasure meds which cause drug intereaction issues and casue my vitals to go hay wire at times. Dr said to plan on 4-5 days in hospital and to plan on taking 4 to 6 week soff work. he was going to tell insurance company 6 weeks to give time.
the surgeon is a colon and rectal surgeon and comes highly reccomended by both by GI dr and my family Dr. so i feel i am at the right place.
a couple of questions:
1) 4-5 days seems too quick to be out. what should i expect?
2) how big of a scar? he said 6 to 8 inches and it might go side ways due to my issues
thanks so much