I am usually on the Ulcerative Colitis board, but feel that I need to ask for any opinions..
I was diagnosed with U/C (proctitis) in 2005, did ok with the typical meds, canasa, rowasa, lialda, now Apriso.. I eventually got to the point where pretty much nothing would keep me in remission, not even Prednisone... So I tried Remicade and wouldn't you know.. the next day I stopped bleeding...
Well, 3 weeks after the Remi, I developed some neurological symptoms and had to quit the Remicade.. I was tapering off the Pred during that time and once I got down to 2.5mg, I started getting this pain in the lower right side of my abdomen... I thought it was appendicitis and went to my Dr after a few days because it was bothering me so bad. They did a CT scan with contrast and found nothing wrong with my appendix then sent me home..
Well here it is almost 4 weeks later and I still have this right sided pain, and now in addition to that, I get this rumbly, sore kind of feeling in my guts every now and then.... I've lost 10lbs in 3 weeks and my appetite is not that good.. Sometimes I feel a bit nauseaus when I get the gurgling sore feeling but not bad enough to throw up.. I do get some relief if I lay down flat when I feel like that.. The only time I feel halfway normal is in the AM after not eating all night or if I don't eat at all... I am wondering if this sounds like it could be Crohn's? My GI has me scheduled for a small bowel follow through test this Friday and then if it shows no obstruction, he wants me to swallow that pill cam to get a look at my small intestine..
I feel desperate.. I'm so sick of feeling sick and starting to get depressed where I don't feel like doing anything.. not even the important things I need to take care of like paying bills, etc...
Diagnosed with Ulcerative Colitis January 31st, 2005
Remicade, One infusion October 22nd, developed symptoms of MS 3 weeks later, Brain MRI showed multiple lesions.. eek!
MEDS: No more Prednisone as of 1/06/10!!!!! Started my taper as of 10/23/09..woo hoo!!!
Apriso 1.5gm once a day, Nexium 40mg once a day, Wellbutrin 150mg once a day. http://www.myspace.com/77016897
Post Edited (Susiebuddy) : 1/19/2010 10:48:30 PM (GMT-7)