How much of it is Actual Tiredness, Laziness, Comfort of Resting, or just Losing that Get Up and Go?

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Regular Member

Date Joined Oct 2007
Total Posts : 390
   Posted 1/23/2010 6:11 AM (GMT -7)   
So I had a flare that started in mid-December (although the symptoms started in Nov) and I am still trying to get it down.  I had my Remicaide 3 weeks ago, have been on Prednisone for over a month now, took Cipro and Flagyl last month but still have D with b.  Not as much frequency, thank goodness.  But here is my question:
I cannot seem to motivate to do a lot of the things I need to do.  For example, yesterday I left work early, came home and planned on going to a yoga class (so yes, if I can do yoga then I am not deathly ill but even if I am not feeling great I am going to try to do as much as I can because it does wonders for my mind AND digestive tract).  But I got home and changed into my p.j.s and climbed into bed with my laptop.  At 4:30 p.m.  On a Friday.  And pretty much stayed in bed for the rest of the night until I went to sleep at 11.  Decided I would do all my errands, etc today.
Today is here.  Have been up since 5.  Still in bed (with the exception of bathroom OBVIOUSLY :)
I am wondering if anyone else experiences this when they are not deathly ill - when I am really sick I am in bed all the time so it doesn't matter, I need the rest and am not much good for anything else anyway.
But right now I am going to work, I can go to the gym, I have an appetite, etc - I just have no motivation to do anything.  I don't think I am tired (although I am not really sleeping well), and it could be laziness due to the cold weather outside and the comfort of being under the covers but really, this is no way to live.  Should I take more Iron from losing blood?  I am trying not to eat meat or dairy, so maybe more protein?
I don't think it's the diet though, and I am just trying to identify what is going on/when this will subside to see if there is anything I can do to expedite this.  I am not feeling depressed but am really losing motivation to do anything.  I like to PLAN to do things, then they are falling through.  I have little desire to go out socially, or get dressed up and go places or do anything other than just kind of hang around. 
Thoughts?  Similar situations?  
32 yr old Female
Crohn's Colitis
DX 12/06
Currently on Remicade, trying to remember to take Multivitamin and Calcium, need to start taking Probiotics and Omega 3-6-9 and Vitamin D

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 1/23/2010 7:43 AM (GMT -7)   
I am currently in remission myself, but one of my continuing problems is fatigue. Since I added some additional Vit D into my med mix I am a little better, but still tired. I have to be careful of not sitting too long on the couch etc or I will pass right out. My husband and I always joke about my nap before I go to bed. So you are not alone, I think its just part of the disease sometimes.
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 1/23/2010 9:21 AM (GMT -7)   
I am right there with you. Some days I have great plans to do so much, then I will sit down and before I know it, I have wasted all morning doing absolutely nothing. Like today. I don't really have anything that HAS to be done, so I'm not going to do anything. I have lots of things that I COULD/SHOULD do, but I am just not motivated. I am old enough and have had this disease long enough to realize that on those days I just give in. If I don't take care of ME, I can't take care of anyone else.

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Veteran Member

Date Joined Jan 2007
Total Posts : 3200
   Posted 1/23/2010 9:48 AM (GMT -7)   
My get up & go, got up & left a long time ago. I think Nanners & Zanne are right, it's the nature of the disease. Well
at least I think so....

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...

Regular Member

Date Joined Feb 2009
Total Posts : 269
   Posted 1/23/2010 1:23 PM (GMT -7)   
you are describing me when I am depressed
Diagnosed 2005.  41 year old female living in UK
Current medication  -  infliximab infusions, ranitidine, Vitamin B12 injections, anti depressants

Elite Member

Date Joined Jan 2005
Total Posts : 24909
   Posted 1/23/2010 2:12 PM (GMT -7)   
Ppl can be depressed w/o truly knowing they have a few of the common sx of depression going on imho...but i am not a doc ..just going on self history and the sx i had/have when depressed..there are so many varying degrees of depression and each person has their own sx plus the more common of ppl that are dx with depression such as constantly sleeping..withdrawing from others and activities that they once so enjoyed..isolation....there are some ppl with depression that dont even realize thats what they have i believe this..just my opinion.....also having this dd or any chronic illness /disease would be enough to start ppl on the path to some state of depression..again just my opinion........keep us posted k are certainly not alone in this...lyn
                                Co Mod for Crohns, Anxiety/Panic, Alzheimers
   Crohns..Pyoderma gangrenosum,..Anxiety / panic..Fibromyalgia,,Neuropathy...Deaf...Seizures
                        I DONT COMPLAIN...OTHERS ARE WORSE OFF THAN I AM                                   
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                        HW FRIENDS N FAMILY TRULY DO UNDERSTAND                                                 

Regular Member

Date Joined Oct 2007
Total Posts : 390
   Posted 1/24/2010 8:18 AM (GMT -7)   
Thanks for all the input!  I don't think I am depressed, or getting depressed (although I would not fault myself if I did after dealing with all this).  I thnk what is going on is that I am taking lots of medicine and there is a big disconnect between my body and mind right now- I WANT to do all these things (get outside, go for a run, go to yoga, make a healthy-Crohn's-friendly meal) but my body is still telling me it needs rest and to take it easy.  So I am going to do whatever it is I feel like doing today, just like I did yesterday :) and be happy about being able to do that.  If I feel like sitting on the couch and having a movie day, that's fine, if I get a burst of energy and decided to check off a few things from my to-do list (laundry, clean my car, etc) that will be beneficial to me too. 
One thing I will do no matter what at some point is to get outside for a little walk because no matter what, fresh air and sunshine do wonders.
Hope everyone is having a great day!!
32 yr old Female
Crohn's Colitis
DX 12/06
Currently on Remicade, trying to remember to take Multivitamin and Calcium, need to start taking Probiotics and Omega 3-6-9 and Vitamin D

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