So I went to the pharmacy to pick up a refill on my daughter's Pentasa (which she has taken for a long time) and found that the refill had the same instructions (4 capsules 3 times a day), but that the capsules were 500 mg. They used to be 250 mg. I called her doctor and spoke to a nurse who, after talking with the doctor, said that the pharmacy must have been filling her prescription incorrectly all this time. I must have repeated it to her half a dozen times, "So you want Hannah to take 2 grams of medication three times a day for a total of 6 grams?" She said yes, but kept saying something about not having to take as many capsules now. Everything I read about Pentasa says the standard adult dose is 4 grams a day. My daughter is 14 and weighs 80 pounds. I've got a phone message and an email in to her doctor/nurse, but am not going to have her take the full dose until I hear. What do you all say?
mother of Crohns patient, diagnosed at age 8, current medications Entocort, Pentasa; supplements include multivitamin, fish oil, glutamine, and floristar
previous meds: remicade, methotrexate, azathioprine (all of which she had severe reactions to); bowel resection in March of 2009 (13 inches of small intestine, ilieum, and a bit of large bowel and appendix)