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Regular Member

Date Joined Jul 2008
Total Posts : 82
   Posted 1/25/2010 8:50 AM (GMT -7)   
I just needed to get on here and vent to those that I know can understand. 
I have really not been feeling well lately and it is taking its toll on me.  I am either always in the bathroom and/or in pain.  I am constantly wore out and tired and could fall asleep at the drop of a hat.  I also currently have a surgical hernia that I am dealing with and having troubles with.  I work part time - 5 days a week though and have 4 kids.  My family is wonderful, but I feel guilty for feeling bad all the time.  I also am having some issues because I can't lose weight.  I know that seems petty compared to everything else, but having been diagnosed with a body image problem years ago - it is something I struggle with everyday.  I am not a skinny Crohny.  The last time I went to the doctor, she said that my tests showed that bascially there is a 20 minutes time period from when I eat until when it empties from my system.  I try to work out 3 or 4 times a week and still nothing.  I am also tired of people acting like just because I am not rail thin - I must not be that sick.  I just don't get it and it is really getting me down. 
Like I said - not necessarily looking for answers - unless you have them.  Just needed to vent to people who know what I am going through.  Thanks for listening.
Diagnosed with Crohns in May 08
Resection in November 08
Currently on Humira, Entocort, Xifaxan, Zoloft, Ritilan SR, B12 injections, Calcium and Vitamin D
Married, mother of 4

Veteran Member

Date Joined Jan 2007
Total Posts : 3200
   Posted 1/25/2010 9:09 AM (GMT -7)   
IMHO, it's no wonder you're worn out. You have CD, you look after 4 kids, and you hold down a job. Don't be
so hard on yourself sweetie. Plus there are lots of not so skinny sufferers, but that doesn't mean you're not suffering.
I'm thin right now, but when I was real sick and on pred, I gained a lot of weight, and like you everyone thought I
looked good, when in fact I was at my worse. Now I'm skinny everyone wants me to gain a few. It's one of those
darned if you do and darned if you don't!!
Hang in there, this to will pass :)

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...

Veteran Member

Date Joined Oct 2009
Total Posts : 1070
   Posted 1/25/2010 9:24 AM (GMT -7)   
I agree. It sounds like you do plenty. I am having some difficulty right now also and I agonize about calling in sick even though I have saved hundreds of hours of sick leave. I feel guilty anyway.

So give yourself a break. And keep pushing yourself to exercise. Do you walk? A good ole fashioned arm swinging whistle while you walk is a good way to go when you feel well enough to venture from the toilet. Be nice to you

artist guy
Veteran Member

Date Joined Jan 2010
Total Posts : 1373
   Posted 1/25/2010 10:14 AM (GMT -7)   
I agree with everybody, my god girl you do mucho, lovew your kid's and yourself
cd since 1970 4 surgeries 2, 1 obstruction, 1 resection that was eletive to ward off obstuction. meds'd are entocort, pred when flare is beyond entocort's help, vicodon when it's bad and just good diet, lot's of papaya'a fresh and good fiber, no green leafy or dairy
artist guy

Veteran Member

Date Joined Mar 2009
Total Posts : 1118
   Posted 1/25/2010 12:06 PM (GMT -7)   
Hi, can't totally understand where your coming from,the beginning of last year i felt so ill along with guilt of what i was putting my family through. As for the weight issue i'm on the otherside of the spectrum a crohnie that struggles to put on weight and keep it on Maybe getting the medical side of things sorted first, and then start thinking of losing weight you seem to have to much going all at once, wishing you all the very best Bev x smilewinkgrin
Diagnosed with crohns at 13 now 43
Reversal of temp stoma Postponed till ???????
Meds: Iron syrup,Loperimide,Folic acid & Citalopram 60mg (for Anxiety.)

" I may not be there yet, but I'm closer than I was yesterday."

kia c.
Regular Member

Date Joined Jun 2004
Total Posts : 111
   Posted 1/25/2010 12:23 PM (GMT -7)   
Good God you're a mother of four!  No wonder you're tired.  I'm a mother of none ... unless you count my 53 year old husband (!) ... and I'm exhausted. 
Personally, I don't think anyone understands how anyone else feels.  I can sleep 12 hours a night and wake up exhausted.  I can barely keep my eyes open at work.  I don't want to cook.  Any disagreement with my husband causes my stomach to "turn" on me.  Oh!  And my vain co-workers think I look "great" cause I've lost weight.  They don't get that I DON'T feel good. 
Today, my doctor told me the best thing I can do for myself is eat healthy and get lots of sleep.  Not sure how I'm going to either since my stomach is sour all the time ... and there's two humans and two dogs in the bed! 
Thinking about you ...

Regular Member

Date Joined Jan 2010
Total Posts : 221
   Posted 1/25/2010 9:11 PM (GMT -7)   
Be gentle with yourself and think of something each day you can bring health and harmony to your body and soul. Your kids will benefit from a stronger mommy. I raised three on my own, dx with Crohn's with three in highschool, so I know. I'm currently on pred and gaining weight ... extended belly and abdom / face and hate it ... but it is all for getting the CD whipped into remission. Imagine babysteps and you are taking steps for health and learning how to nurtious your body and soul and spirit along the way ... and strarting here is a good start. I need to lose 30 pounds if it is any help ... ha!
Diagnosed with Crohn's 2004 via pill camera    Imuran (6MP) kicked into remission (along with modified diet) so went off in 2006.
2009/2010 acute flare and hospitalization - put back on Imuran. Currently taking 55 mg prednisone.
Current problem - protruding thrombosis hemorrhoid.

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