Welcome, I felt as you do about finding this site. The discussions here really help with trying to figure out what to ask my Dr but also when I am weeks (or months) away from seeing him I usually find someone here that can help with a question.
So ask away, someone here is bound to have been through something similar.
Diagnosed Endometriosis 1998, Crohns 2008
Drugs: Pentasa, Entocort, B inj