I can't answer your question, I have not had Pico Salax. But what I wanted to ask is about the short bowel syndrome. My mom had SBS. (She had CD and multiple resections) She had a Medium Chain Fatty Acid that she had to take on a daily basis to maintain her weight. This went on for years. While she was under weight, for sure, she was not on the verge of death, and it was not CD that caused her death. The MCFA was a bit nasty on its own, but it could be added to recipes like muffins or such so that you didn't just have to take a teaspoon of oil. Have your doctors mentioned anything like this to you? Is anything like this an option for you? Can you get any assistance from the Canadian Crohn's foundation in finding some up and coming doctor who wants to make their mark with a really difficult case?
Sending you best wishes and I hope you don't have to spend another long time in the hospital.
CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!
Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....