It's nice to find somewhere for 'chat'.
I knew of someone who had crohn's, didn't know too much about it and to be honest just thought people with it had an upset tummy-looking back now I cannot believe that is all I thought it was, talk about ignorant.
My 16 year old son was diagnosed November 09. I fully believe that he has had it for many years but the GP put his pain down to heartburn and despite another consultation we had with him regarding son's height and weight he still fobbed us off (told me that I wasn't exactly that tall myself 5' 9")
Anyway eventually went back and I wasn't going to leave until we had a referral(which needless to say we did get
From that point things have moved pretty swiftly and I have confidence in the consultant. Son had a colonoscopy (with biopsies) and barium follow through x-ray. Was put on pentasa and anti-biotics x 2. Has just spent 7 weeks on the liquid energy food replacement drinks, managed to gain just under 3 lb, not brilliant but it is a start. Now at the stage of re-introducing food. He has been put on entocort for three weeks whilst we do this and then he is moving on to one of the immunosupressants(sp ?) subject to blood test results. Have been told that he will need weekly blood tests on this drug and will also need the B12 jabs on regular basis.
Son is ok, quite matter of fact about. I just feel like I am constantly giving him tablets, both before and after he eats as well as trying to get him to eat, drink, take his energy drinks etc and tbh I just wish that I could have it instead of him
I feel like we have been put on an emotional rollercoaster and I would like to get off now please!!
Needless to say I am reading anything and everything that I can get my hands on-there is so much to take it. Quite interested in theories regarding different foods/milk etc but at this stage son does not want to give up certain foods that he likes-maybe time will alter his opinion or maybe during food re-introduction something will trigger a reaction and he wil be put off of that food by it. I guess in a perfect world he would have no more problems ever (I know-pigs fly!!)
Anyway it has been good to let it out, thanks for listening