I have felt despair ESPECIALLY when I was first diagnosed and I read the information on it, or during flare ups when I am reminded that it is a permanent disease and I have to learn how to control it. It's a hard thing to swallow that I will never be cured especially when one is in remission and feels great.
You should try to educate yourself as much as possible about
Crohn's and alternative treatments and try to find something that is tailored to you because all of us crohnies have different symptoms and different grades of the disease. I tried Humira last April, but I was one of the 2% of the population that got severe headaches as a side effect so I had a migraine for 74 days after only being on it for 2 weeks. I have also met someone that had diarrhea 30x a day and swears by it and have friends that are doctors that prescribe it to their patients with successful results.
You have to have an
open mind and have to be patient because some of the treatments especially alternative ones such as supplements, acupuncture, etc take a while to "kick in." And I can empathize with the scared to death part because I had no clue when I took the humira how awful the next few months would be for me. I'm a bit gun shy with trying remicade or the other drug like it just because I don't know if I'll have the same reaction but I'm sure sooner or later, I will have to make the leap again in hopes of remaining in remission.
I personally found that acupuncture, supplements (such as acidopholis, Vit D, multivitamins, and fish oil), and chiropractic work well for me.
Good luck to you =)
lamictal 200 mg/asacol 2 pills 3x day/imuran 100mg day
Started humira 3/14/09.... pulled off due to migraine side effect. Dealing with Migraine since then with no end in sight...