I saw your post in the other thread about Xifaxan. I just wanted to tell you that my insurance company really balked at paying for it. They gave me an initial trial, like your daughter, but then said no. Since there was evidence that it had worked for me. My doctors office filed for off label use and the drug company was more than happy to help fight. They basically inundated my insurance company with files of tests done to show that it works as an off label use for CD. It took almost a month to work it all out, but then each re-application only took a couple of days. I still had to pay for a tier 3 co-pay, but that was way better than paying out of pocket. I'm not sure how your insurance works, but you might have some luck, and the anti-MAP and Xifaxan might be complimentary.
CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!
Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....