NSAIDs...are they really THAT bad?

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Regular Member

Date Joined Sep 2009
Total Posts : 212
   Posted 2/3/2010 6:48 PM (GMT -7)   
Okay so I'm frustrated here because my daughter (9 yrs old) is in constant pain this past week and I can do nothing to help her. Tylenol does not help. She is crying, doubled over, missing school... sad.  She was just scoped last week and there has been no progression in her disease since last year's scope, which is good. BMs are formed and she is not constantly in the bathroom. But still the pain, which is shutting her down from her life.  All that said, in the past when I have given her NSAIDs (prior to being told NOT to by her GI Doc), they have really helped.  So my question is...would it really be THAT bad if I gave her one on these times when she is struggling so much?  Just one to get her through a school day?  She is on Pentasa, Entecort, and just started 6MP on Friday. The 6MP could take up to two months to have any effect. Thanks.

  • champagnekindofgal
    Regular Member

    Date Joined Jan 2010
    Total Posts : 221
       Posted 2/3/2010 7:29 PM (GMT -7)   
    I wouldn't. I would see a pediatric pain specialist. I could recommend some drugs for adults (i.e. antidepressents or a non-narcotic - a doc has given my 15-year-old for his back) but for a nine-year-old, this is out area of experience.

    If the pain is from her tummy, has your doctor suggested something for the cramping such as dycyclomine or hymomax? I was given these in the past ... but again, for a child so young, I don't know the protocol is ... I'm sure another mother of a Crohn's child would.

    A heating blanket or warm bath helps me immensly as do good movies and a back rub if all else fails! I would also look at what foods/ situations are causing her to flare in the first place ....

    I hope that helps a tiny tiny bit ...
    Diagnosed with Crohn's 2004 via pill camera    Imuran (6MP) kicked into remission (along with modified diet) so went off in 2006.
    2009/2010 acute flare and hospitalization - put back on Imuran. Currently taking 55 mg prednisone.
    Current problem - protruding thrombosis hemorrhoid.

    Veteran Member

    Date Joined May 2009
    Total Posts : 703
       Posted 2/3/2010 7:34 PM (GMT -7)   
    I occasionally take aspirin or naproxen when acetominophen isn't enough and haven't ever noticed worse symptoms. I told my gastro and he advised against them, but said taking childrens aspirin should be fine.
    Cimzia, Asacol

    Regular Member

    Date Joined Jan 2010
    Total Posts : 221
       Posted 2/3/2010 7:43 PM (GMT -7)   
    But asprin is not good for kids, esp with fevers ... you really need a professional to help you ... we can only give you some tips of what has worked for us as ADULTS.
    Diagnosed with Crohn's 2004 via pill camera    Imuran (6MP) kicked into remission (along with modified diet) so went off in 2006.
    2009/2010 acute flare and hospitalization - put back on Imuran. Currently taking 55 mg prednisone.
    Current problem - protruding thrombosis hemorrhoid.

    Regular Member

    Date Joined Jan 2010
    Total Posts : 24
       Posted 2/3/2010 7:51 PM (GMT -7)   
    I wonder the same thing...and worry about taking tylenol too much. My daughter suffers from headaches and muscle/joint pain almost every day.
    My daughter has not been to school for several weeks now and although school can take a backseat to health, it concerns me for the social and emotional stresses it brings when she feels bad day after day and gets more and more withdrawn from the world. It breaks my heart.
    My 14 yr old daughter has Crohn's. Diagnosed March 08. Currently taking Imuran and Pentasa. Also probiotics, Vit D and C supplements, Omega 3, folic acid, calcium.

    Regular Member

    Date Joined Jan 2010
    Total Posts : 221
       Posted 2/3/2010 7:56 PM (GMT -7)   
    I feel for both of you as parents, knowing how both terrible and unperdictiable this disease is ... you hurt so much when your child hurts. Just keep going to doctors or alternative health practioners until you get help. I had to do with that with my son who suffers from back problems of a 60-year-old (details worth of a different forum)!

    44-single mom diagnosed with Crohn's 2004 via pill camera    Imuran (6MP) kicked into remission (along with modified diet) so went off in 2006.
    2009/2010 acute flare and hospitalization - put back on Imuran. Currently taking 55 mg prednisone.
    Current problem - protruding thrombosed hemorrhoids (external as well as internal).
    Fibromyaglia; migraines; herniated disks C5,6 and arthritis in neck; asthma; scolisis in back/arthritis.

    Regular Member

    Date Joined Oct 2009
    Total Posts : 253
       Posted 2/3/2010 8:07 PM (GMT -7)   
    I'm sorry your daughter is feeling so badly :( You and my mom could probably relate... when I was 7-9 I had a lot of problems with nausea and pain in my stomach but couldn't really articulate what was going on with me so they couldn't diagnose anything. School counsellors and teachers just told my parents I was faking it and depressed but I really did feel sick. Looking back on it now I realize it was probably something to do with Crohns... but after 9 years old it went away again until I was 18.

    I'm not sure about your NSAIDs question, the best option might be to investigate with your doctor a good pain management plan... I hope she feels better really soon
    female 19, diagnosed crohns december 2008
    entocort/pentasa previously, now prednisone & imuran, probiotics, calcium w/d3, biotin, folic acid, zinc, omega 3s, digestive enzymes & prenatal multivitamin

    Elite Member

    Date Joined Feb 2004
    Total Posts : 20577
       Posted 2/3/2010 8:11 PM (GMT -7)   
    The thing about NSAID's is they can cause bleeding in the bowels so tread with caution.

    bee propolis caps 500mg one cap twice/day
    omegas 369 caps one cap twice/day
    probiotics 10 billion cfu once/day
    vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
    Prodiem fibre supplement one cap before bed
    I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
    I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
    ~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~

    Regular Member

    Date Joined Feb 2003
    Total Posts : 231
       Posted 2/3/2010 10:00 PM (GMT -7)   
    Last time I took some I almost ended up in the ER... The pain they caused trumped the pain I was fighting by about 1000. I would stay away from them totally.

    Veteran Member

    Date Joined Sep 2006
    Total Posts : 845
       Posted 2/4/2010 2:37 AM (GMT -7)   
    NSAIDS are bad for anyone with IBD and even worse for someone that is flaring. Sure one or two times may not seem to cause damage but that does not mean that it is not. If you child is in that much pain then I would call your G.I. and tell them. If they refuse to do anything then I would get a second opinion with another G.I. There is no reason that your child should have to needlessly suffer and a good doctor should know this. In the meantime I would talk to the school about letting her bring a heating pad or one of those bean or rice bags that you can heat up in a microwave. Those stay warm for a long time and are not hard to make. You can probably get your G.I. to write a note if the school gives you a hard time about it, but it is worth the try. I would not gamble with the potential for disaster by temporarily solving their pain with NSAIDS. You never know when the time will be that it causes damage. I am one of those that found out the hard way what NSAIDS do and ended up with a severe G.I. bleed and pain worse than the arthritis that I was experiencing in the first place.

    Veteran Member

    Date Joined Mar 2009
    Total Posts : 1118
       Posted 2/4/2010 5:46 AM (GMT -7)   
    I took a couple of NSAID in the past, really didn't agree with my insides, I was constantly on the toilet pooing blood along with another pain to deal with! When i mentioned it to my GP he said they can cause internal bleeding I would ask your doc if there is anything else they can prescribe for your daughter I really wouldn't go down this route Bev x
    Diagnosed with crohns at 13 now 43
    Reversal of temp stoma Postponed till ???????
    Meds: Iron syrup,Loperimide,Folic acid & Citalopram 60mg (for Anxiety.)

    " I may not be there yet, but I'm closer than I was yesterday."

    Elite Member

    Date Joined Apr 2005
    Total Posts : 14995
       Posted 2/4/2010 7:24 AM (GMT -7)   
    MoobyDoo I agree with all of the above. The NSAIDS are not good to take especially while she is still flaring.

    What I would like to know is exactly where is her pain? Is it joint pain, or is it tummy cramping pain? If it is joint pain, maybe you can take her to her pediatrician and ask them for something for her to take in those bad times i.e. Tylenol 3's. If it is tummy pain, I think as mentioned above Bentyl, Levsin or Librax might help with the cramping.

    She should not have to suffer. GI's are notorious for not giving pain meds, I have to go to my family doctor for those. Good luck!
    Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
    Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
    *Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

    New Member

    Date Joined Aug 2009
    Total Posts : 17
       Posted 2/4/2010 8:02 AM (GMT -7)   
    I would be afraid of giving her the n-saids.Call the dr. and let them know that she is so much pain . There is a website for parents of kids with IBD-It is dragonpack.com.Those parents have been through it all. My daughter is 12 with crohns-diagnosed at 10.I believe we even go the same practice if I remember correctly(geisinger?)
    My dd started 6mp in September.She had been on Remicade and Humira.We did Prednsione as a bridge until it kicked in.Knock on wood she is getting relief.She went off Pred around Thanksgiving and is doing well with just the 6mp.I hope the same happens for your little girl.
    I love the drs. at Geisinger.They have all helped so much.I have seen 3 differnet ones there(when our Dr. was out of country)and they have all listened to me and DD when we say disfferent things about her treatment.Call the dr. and see what he can advise to get her out of pain.
    One other thing,my DD has stomach pain and nausea at times even when her bms are "normal" and it  has been very painful gas.Our gi has allowed gas-x(we use the strips that go on her tongue)and it has helped.She is also on omeprezole(prevacid etc).Have these avenues been explored?
    Hope this helps.
    Mom to DD 12-6mp,omeprezole,Florastor,iron,calcium,multivitamin

    Regular Member

    Date Joined Jan 2010
    Total Posts : 448
       Posted 2/4/2010 8:18 AM (GMT -7)   
    Hot baths? Heating pads? Tramadol?

    Rider Fan
    Veteran Member

    Date Joined May 2008
    Total Posts : 1445
       Posted 2/4/2010 10:30 AM (GMT -7)   
    I'm not sure if you can give T3's to a 9 year old but it's worth asking her GI or family doctor. That's what I use.  Of course, that might make her too drowsy for school...

    33 y/o male. Dx'ed in 1999. No surgeries.

    Current meds: Humira 2/27/09. Proferrin iron pills.

    Tried SCD, didn't work, now avoiding gluten and dairy.

    Go Saskatchewan Roughriders!

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