worried about my mom

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New Member

Date Joined Feb 2010
Total Posts : 1
   Posted 2/6/2010 3:14 AM (GMT -7)   
my mom has crohns was diagnosed about twenty years ago.  has endured many maybe all known treatments.  for last several years she has been on the remicaid infusions and about five months ago they increased them from one every six weeks to one every four weeks  she has been getting sick more often but also her Dr. retired.  let it be known she is a very stubborn patient and has quit the infusions before because she didnt think she needed them anymore.  anyway why i'm here.....she started urinating blood yesterday.   she won't call her crohns Dr cause she doesn't like him, which also means she probably won't be seeing him again and there aren't too many Dr. for crohns in KS or so I;ve been told.  she did just have a well check last week but she always makes them think she is doing fine.  end result of tonights talk with her was that if it is still happening on monday she will call the Dr that gave her the well check.  this scares me..... how serious is the blood in her urine?  i can only say that there was enough to lead her to believe she was having a period.  she told me if i told anyone she would never tell me what is happening with her again.  in the past my aunt, my sis and myself have intervined with her attending appointments just to get her to go.  any advise?????

Veteran Member

Date Joined May 2007
Total Posts : 1220
   Posted 2/6/2010 5:27 AM (GMT -7)   
Hello Jereka,

Welcome to the Forum! I am so sorry your Mother is experiencing this! I know from personal experience that the last thing we want is a new symptom. Just thinking about all the tests, time spent in Dr. offices and hospitals, and the possibility of some serious problem leaves me so tired and disheartened! The great news is that most tests for blood in urine are relatively easy - some are very easy! I googled "blood in urine" and found this Mayo Clinic website:


It sounds like it could be from a variety of reasons. I encourage your Mom to see the Dr. ASAP and see what is causing it.

Take care!

Post Edited By Moderator (Nanners) : 2/6/2010 8:16:29 AM (GMT-7)

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 2/6/2010 8:25 AM (GMT -7)   
Fallcolors is right, when we start feeling bad, we ALL tend to put off of going to the doctor because with our disease, none of the tests can be pleasant if you can imagine. So we avoid going to the doctor because we know what misery is coming. Doesn't make it right, but when our quality of life gets really really bad, we give and go to the doctor. I am glad you got her to at least go in and see her family doc to check things out. She could possibly have a fistula to the bladder and its best to start treatment asap.

Your Mom sounds alot like me when I was at the 20 year mark. I had been in a long remission and then the Crohns reappeared and I didn't want to believe that I had a chronic and incurable disease. The denial can be pretty strong. But believe me within time the Crohns will win. I am not sure you can make your Mom do anything she doesn't want to, so you may have to be patient and let it get to the point where she HAS to do something about it. I know its hard on you, but your Mom needs to get to that point before she will do something. Your are a good daughter though for researching and trying to find ways to help your Mom. Good luck!

Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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