So I have been having somewhat of a flare since around Thanksgiving. Yes, it has been that long, and ongoing. I had to take antibiotics in Nov and I think that triggered it. I have had 2 Remicaide infusions since then and am still not back to "my normal". My dr started me on Pred in mid-Dec (40 mg), which I only took 30 mg of and then tapered down myself as I felt better - bad idea, since I am still not better and went back up to 40 mg mid-January anyway.
So I just got a bunch of test results back - all my blood work is NORMAL, stool samples (c. diff, parasites, all the terrible things) are NORMAL, my CAT scan was NORMAL and even showed no inflammation!!!
SO WHAT IS GOING ON?!?
It feels like it's concentrated in my rectum, so my dr said I may have internal hemm. that are bleeding, etc. He wants to me to come in for a flex sigmoidoscopy next week.
does anyone else seem to have this issue? :::TMI::: I have mostly formed stool but lots of other stuff - it's like my insides are falling out sometimes - I have gas and pain and blood. Not a ton of D and not a lot of mucous anymore. Usually the pain, etc is during the day but I have been waking up at night a few times (always a bad sign). It is not as bad as it has been in the past but I just feel like I am not getting back to 100%. I can do everything else normally, I go to work, I exercise, I have a normal appetite, etc but I am getting these isolated incidents throughout the day.
Am I getting better, just more slowly than before? Any thoughts are welcome!
32 yr old Female
Currently on Remicade, trying to remember to take Multivitamin and Calcium, need to start taking Probiotics and Omega 3-6-9 and Vitamin D