When I was diagnosed ten years ago, at the age of 10, my bed was my favourite place to be - and it still is. Is it just me, or do other people long for their bed at any time of the day, given any opportunity or is simply laziness?
When I was first diagnosed I was severely anaemic, and my bed was my only respite. I wasn't cold, I didn't have to struggle to stand up and hold my own weight. My bed was my comfort, the only place I felt safe. But that feeling has never quite gone away and ever since I crave sleep the majority of the time - through flare ups and remission. I guess it is partly psychological.
What I want to know is, how do I overcome something like this? Resisting the urge to sleep- when I feel tired most of the time and getting up early in the morning is torture. Don't get me wrong, it hasn't stopped me achiving success - I achieved excellent grades at school, A levels and will finish my degree in Psychology later this year. But, if I'm honest, although I have put so much effort into preparing for my future career, I just don't know how I will manage a full time job. The thought of it scares me and if anything, a work from home job would suit me perfectly.
I just wondered how the rest of you have adjusted/ gave in to lack of energy. Can we overcome it? Should we feel guilty about it? Or do we use it as an excuse. All I know is, I would love to have so much vitality that 7 hours a night would keep me going all day.
Best wishes to everyone