So I have not had all the horrible symptoms you have had - fistulas, strictures, resections, surgeries, etc. With my recent flare, I've had other "extra intestinal manifestations" but they are mild in comparison - nose ulcers, hemorrhoids, joint pain, etc. I'm going to ask my GI doc if I'm due for a colonoscopy to see if I have any intestinal scaring, etc as I've not had any indication of this before.
What got me thinking is everything I read about Crohn's seems to say it is progressive disease. Do you agree? I guess that would fit with the inflammation process. All my CRP, white blood cell count and sed rates are ALWAYS normal, even during an acute flare when I'm in severe pain and have severe symptoms. It is weird and my GI doc is perplexed, said he has never seen it.
Also, I was on the Prometheus website and they have a new specific test to predict I guess how severe your CD might be ... has anyone had this test done? Was it somewhat accurate? Do we have any influence to turn the clock of inflammation back?
I've just ordered some new products which I've had luck with in the past, hoping to calm my gut down as they deal with inflammation on the cellular level ... I feel like I'm racing against time as I'm tapering off my prednisone and my bowel movements have gone from one a day to about six ... no D yet, but I'm hoping to avoid it at all costs ....
Anyway, would appreciate any thoughts on this random stream of thoughts above.... thanks!
44-single mom diagnosed with Crohn's 2004 via pill camera 6MP kicked into remission (along with modified diet) so went off in 2006.
2009/2010 acute flare and hospitalization - now on Imuran. Currently taking 55 mg prednisone.
Current problem - protruding thrombosed hemorrhoids (external as well as internal).
Fibromyaglia; migraines; herniated disks C5,6 and arthritis in neck; asthma; scolisis in back/arthritis.