WOWSA ... this post is like a war memorial wall, so many postings.... Amazing to see what we all collectively struggle with. I respect you all.
I'v been very fortunate in the past, although I'm fearful of the future:
Sick in 2003, Dx in 2004, took 2 months disability (I worked then for a GREAT Corporation that made it happen) in 2005 and really needed more, I had been traveling 20 weeks a year and having D about 20/30 times a day when I chose to eat. Severe pain and symptoms.
In remission for the most part by this time, didn't miss any work from later 2004 to 2009, moved from CA to IA. Not on any Crohn's maintainence meds (BIG mistake - I thought if I was remission, didn't need them!) and got the swine flu. Set 10 weeks of severe pain/disability and hospitalization and recovery into motion. I was not working so I didn't have to miss work.
I just got a job this week - YEAH! and I feel that finally my I've got my diet, supplements, symptoms, RX (Imuran even after 4 weeks seems to be working, imaging? Tapering off prednisone.) so the time is right. Only thing is new employer doesn't offer sick days nor health insurance although they said they are "trying" to get health insurance.
So this scares me ... my COBRA benefits are going to run out soon .. tic toc.
Artist Guy ...do you live in the US? Your employee benefits with sick leave seem very generous?
44-single mom diagnosed with Crohn's 2004 via pill camera 6MP kicked into remission (along with modified diet) so went off in 2006.
2009/2010 acute flare and hospitalization - now on Imuran. Currently taking 55 mg prednisone.
Current problem - protruding thrombosed hemorrhoids (external as well as internal).
Fibromyaglia; migraines; herniated disks C5,6 and arthritis in neck; asthma; scolisis in back/arthritis.