I am taking precautions to try not to catch this bug, though contrarily, I want to catch it, just so I can be sure that it is a bug, and not crohn's.
He's off the flagyl and the entocort now, since the doc told us to stop it. Hopefully he'll continue to improve. He slept through the night, but had some loose mushy stool this morning - and of course hyper-vigilant me is worried; worried that this is crohn's rather than a bug though almost everyone thinks otherwise. But the weekend is tomorrow, and I hate going into a weekend not knowing if he's going to slide downhill, because that means I can't pick up a phone and consult with his doc, I have to go to the ER. I am trying to think positively and just not go into irrational anxiety.
I keep reminding myself that we are so much better off today than we were on tuesday. He's actually sitting up at his desk and working from home today, whereas on tuesday he was moaning in bed. I hope he continues to improve through the weekend.
You guys are so nice. Yes, it is tough on me too - it's been a pretty rough 2 years - what people don't understand is that just because you bring something under control, doesn't mean that life becomes perfect. You still deal with the steroid taper, the restricted diet, and the worry. For instance, my husband has had his arthritis under control since Nov 10th or so - but he's still tapering the steroids, and every time he tapers, it's rough on him. He's been c-diff free since the second week of September, but we still have him on a low residue diet, and he still takes all his meals at home, just to be on the safe side. He's scheduled for a physical and a bone density test because we're worried that in the last 2 years, we've taken care of his digestive health, but he hasn't had a physical (and heart disease runs in his family), and he's been on steroids for 50% of the last 2 years, that we're worried that he has bad bone density. It's just always something - crohn's, arthritis, c-diff, stomach flu . . . it's like you are running an obstacle course as part of this marathon. This is just a rant. It's been rough, but at the same time, we have also had some fun days. It's just hard to see the fun days when you're worrying so much. I'll try to get into a better frame of mind soon. Until then, bear with me.
Have a good weekend all. I'm sure you'll be hearing from me if my weekend turns to crap (literally probably)
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Canasa, Lialda, Remicade, VSL#3, Florastor
In Remission since June 2008
Stopped vancomycin for c-diff Jan 1 2009
C-diff free, until Sep 2, 2009
Fighting c-diff, I guess for life