At the moment the preds are the only thing that is keeping me sane!! I am still on my pentasa as well, but everytime I taper down and get to 10mg I start flaring up again (lots of diarrhoea, stomach pains that feel like labour pains, and a general feeling of being really not well), now i am to taper down from 20mg again, and then when I get to 10mg, start a course of pred enemas(20mg)every night for a week , I presume this is like a shock system, as then I will be on 30mg of pred, then after the week of enemas (which I am dreading!!!) the pred will be on 5mg for a week before I stop taking it, thats if I dont flare up majorly again, whilst doing the tapering thing yet again!!!
So whether pred is actually working, except for keeping my symptoms at bay, I'll let ya know when it comes to the crunch of coming off it again after the 5mg which will be in about 4 weeks!
I still feel like I am flaring even now whilst on the 20mg, maybe because my body has to get used the higher dose again after being off it for a week, but I cant remember feeling unwell like this when I first started taking the 20mg at the start of the flare before.
Michelle 40 years old
Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
Bowel resection 2005
medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
loperamide 2mg (prn - take as many as 10-20 a day)
calcium tablets, multivitamin tablets, Omega 3
questran light (3 sachets/day), 3 monthly B12 Injections