I have Crohn's colitis, with my main symptom being diarrhea. I'm currently flaring so now it's blood too. :( And more diarrhea. Great.
Anyway, I have been trying different things to try to get things under control, and trying probiotics was one of the things I wanted to try. I tried Align and didn't notice much of a difference, so after researching around on the UC board I started taking VSL #3 DS. Most people said that was the best probiotic out there because it had the most strains, but I'm not noticing any difference. In fact, lately, I've been noticing that after I take it I have a CRAZY diarrhea attack (like, worse and different in quality than my usual diarrhea) and I'm wondering if I could be like allergic to it, or if my body is just getting used to it, or if I'm just not meant to take it.
It says it's for use in people with UC specifically, but since my Crohn's is so similar to most UC symptoms, I thought it'd be good to try. I'd like to hear anyone else's opinions on this...I don't want to give up on it but it's so expensive and if it's not helping I don't need to keep doing it...but on the other hand I don't want to give up if it's going to help at some point...
I'm at a loss. I'd love to have anyone's thoughts. Probiotics sound so great but so far I haven't seen the benefits.
28 Year old Female
Diagnosed with Crohn's Colitis March 2000
Recent possible diagnosis of IBS-D
Tried Meds: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Rowasa Enemas.
Currently on: 25mg Prednisone (Tapering SLOWLY from 60), 100mg Imuran, Psyllium Seed Powder, VSL #3 DS, Colocort Enemas, Prenatal Vitamin, Vitamin B 12 Complex, Vitamin D/Calcium, Flomax (for urinary retention).