I certainly understand all of the questions and thank you for taking time to ask. I have had the usual battery of blood tests that you pcp takes, tests for vitamin levels, test for autoimmune disease (negative). I have had three colonoscopies in five years, and two polyps removed. I have not had a pill camera, promethous blood test or a hydrogen breath test.
The only medication I have been given for any type of IBD has been Amitiza. I could tolerate it only at low doses (8mcg twice a day). Right now I am taking probiotics, Vitamin D, Calcium, Flexeril and Xanax.
I have some other issues that may or may not influence treatment. First of all, I am ototoxic. The majority of antibiotics will cause me to become profoundly deaf for periods of time. There are also certain other classes of drugs that have the same effect. High doses of pred is the treatment when that happens. Not fun.
The symptoms I have now are bouts of either total constipation or long bouts of diarrhea. The constipation will not clear up on its own. I usually use Miralax at as low a dosage as possible to start my colon to working. This is when it gets bad. I can spend as long as 7 - 8 hours in the bathroom. I have the feeling of never being completely "finished". When the bm does start it is extremely hard and large. Labor pains are the nearest feeling I can give for comparison to the cramping. There is a lot of rectal pain, some bleeding but once the cramps start they continue until that bout is over. Once the hard stool phase has passed, diarrhea starts. Its really more of a loose stool that comes in torrents and then stop for awhile. No set time, just stop.
The amount is unbelievable to me. I then start back with the cramping and loose stools. As the day progresses, the stool becomes looser and more watery. At times, I pass quite a bit of mucus. It usually ends with passing what I call rabbit pellets.
I have been going through what I described above since the first of the year.
Skin issues are limited to my feet. They sometimes look lke the world's worst case of athlete's foot and itch like the worst case of poison ivy ever. I have a good script for that.
Bleeding is limited to my hemorrhoids, which at times give me a really bad case of roid rage.
I have vomited a few times but not enough to complain about. Nausea is more of a problem . I have passed out after severe cramping which can be scary.
I really don't have joint issues but do have FMS. I also suffer from migraines that are debilitating.
They have had me on some may different meds in the past four years that my priint out is about three inches thick and nothing seemed to work.
I am currently taking the flexeril for bruxism (teeth grinding). I have actually broken four teeth in my sleep. The Xanax is also to help relax my jaws at night. I have TMJ, Bi-Lateral Fluctuating Sensonueral Hearing Loss, Hyperacusis (sensitive to sounds), Tinnitus, osteopenia, Morten's Nueroma and Costochondritis.
I feel as though all of this overwhelms doctors when I first see them and that is why so little is done.
Thank you for asking ,thank you for reading and thanks if you reply.
Crohns/IBS/IBD - also suffer from TMJ, Tinnitus, Bruxism, Hyperacusis, Migraines, Fibromyalgia and I am Ototoxic
Current meds: 16 mcg Amitiza, 3 mg Xanax, 40mg Prednisone (it varies, my GI lets me decide) 20 mg Flexeril and 1300 mg Darvocet