I hate the gastroenterologist I've been seeing. He is a complete ego-maniac and a total jerk, but he's the only one with any
openings. The only ones worth any consideration have waiting lists 3 months long, are retiring, or aren't accepting new patients. I suppose I could wait, but throwing up every day, losing weight, and spiking fevers aren't really on my list of things I could learn to live with.
I saw him about
three years ago, when I first started having symptoms (nausea, vomiting, abdominal pain, rectal bleeding), and he told me I had IBS and that it was "all in my head" and I was "overreacting." He did no blood tests or endoscopy, and came to the IBS conclusion after spending 40 minutes or so ranting and raving about
some other doctor (who had done an EGD on me) stealing his patients.
I was later diagnosed (not by him, I refused to go back to him) with mild early Crohn's disease through Prometheus test, pill cam, and colonoscopy. I started Imuran, went into remission, and was doing okay for several months. Then I had a partial bowel obstruction in August, and everything went downhill from there. Note I've been vomiting almost every day since AUGUST. I started Remicade in January at the instruction of his NP. I've had two treatments so far.
I saw him again today after having an EGD/colonoscopy and pill cam study last week. EGD and colonoscopy were normal; he didn't even bother to LOOK at the pill cam. He said that there's a small chance that the Remicade did its job and healed any endoscopic evidence, but very unlikely. Since I'm still having symptoms, it's probably not Crohn's-related.
Then he went on to say that I probably have never had Crohn's in the first place, that it was just a coincidence the Imuran worked, and that, I quote: "I stand by my original diagnosis. You have IBS."
Screw that. IBS does not make you vomit, IBS does not give you bloody and tarry stools, and it most certainly does not react to Imuran. Nor do they find IBS-related ulceration and inflammation in the stomach, small intestine, and colon!
He's told me that I should go for the third Remicade treatment (WHY?! If it's just IBS, why the heck would a third infusion matter?!), then stop. Also told me to stop Imuran and Pentasa. I'm supposed to go in for a stomach emptying study or something next week, then see him again in March. Maybe, just MAYBE, he'll have gotten off his butt and looked at my pill cam test by then.
I concede that yeah, if the pill cam is clean, then this current vomiting bout probably has nothing to do with Crohn's. That just means he needs to step it up and figure it the heck out. But to say I never had Crohn's in the first place? Just because HE personally can't find anything after Remicade? I just can't believe the measure of this guy's ego. He's rescinded my diagnosis and is taking me off all the stuff that even makes it possible for me to function at a basic level. This really doesn't feel right to me at ALL.
I think it's partially because he looked further into my records and saw that I made a complaint against him to the clinic's manager about
3 years ago.
I'm going to email my internist and see what he can do, if he can get me into someone else. I would be happy if I never had to see Dr. Evil again. And I really don't want to see the consequences of going off meds.
Diagnosed with Crohn's in 2008 at the age of 22.
Currently on: Remicade, Imuran, Pentasa, Zofran, Tramadol, Welchol, Phenergan, Ambien, Metoclopramide, Omeprazole, Hyoscyamine