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Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 2/17/2010 3:25 PM (GMT -7)   
So after seeing an outside GI for my bacterial overgrowth testing, (which was positive, and who pretty strongly recommended surgery), again my VA GI wants to try Cimzia.  I do not want to do this, very simply because according to student health center I got lupus from both remicade and humira.   I was in way too much pain to make it to the VA hospital for them to test for lupus, so by the time I got there I was not popping positive ANA for lupus.   My VA GI says since there is no VA record of me being possitive for lupus, I basically have to do this drug if I want to continue climbing the ladder of treatment steps.  I am sending him my postive tests from student health.
I feel like they are basically waitting for me to fully obstruct.
Mad! I am! I am!

Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Post Edited (MMMNAVY) : 2/17/2010 8:57:37 PM (GMT-7)

Regular Member

Date Joined Sep 2008
Total Posts : 457
   Posted 2/17/2010 5:20 PM (GMT -7)   
How frustrating. It is so frustrating to have to jump through hoops to have a good quality of life. Wishing you the very best.

Dx'd with Crohns 1984
Polycystic kidney disease in 1996
Bowel Resection surgery 2006, Now on Asacol, Endocort, Prednisone, Imuran, Folic acid, and Enalapril.

Veteran Member

Date Joined Dec 2005
Total Posts : 1768
   Posted 2/17/2010 7:21 PM (GMT -7)   
Awww, Navy, I'm so sorry you're having such a hard time. It's bad enough that you're in pain, but to have to jump through their hoops to get things fixed is absolutely ridiculous. I hope something changes and you get better. I know you've been through a lot for quite some time, and it's about time something falls into place and you start feeling better.

Well wishes and BIG HUGS to you!

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, Coumadin

Veteran Member

Date Joined Sep 2005
Total Posts : 517
   Posted 2/17/2010 7:21 PM (GMT -7)   
hi, you know that a single doctor cannot possibly know of all the anti-inflammatory drugs out there ( ) link is from -Anti-Inflammatory Agents, Non-Steroidal... When a doctor looks to a medication in their 'lilttle book', they check if it has been prescribed for the smyptoms , condition and (probably if their group backs the particular manufacturer). again theres no way you exhausted the milder drugs as there is unlikely to be a physician who is familiar with some of them let alone all of them. and i cite here just one category.

Regular Member

Date Joined Sep 2006
Total Posts : 171
   Posted 2/17/2010 8:53 PM (GMT -7)   
And you have a right to be mad. Dealing with a bureaucracy can drive anyone over the edge. I am so sorry you have to go through that to get treatment. Hang in there, it'll get better sooner or later.

I feel a whole lot more the way I do now than I did a little while ago.
Crohn's Dx April 2006. Pentasa and Entocort EC

Veteran Member

Date Joined Feb 2004
Total Posts : 6518
   Posted 2/17/2010 10:11 PM (GMT -7)   
(((((((((((((((((MMMNAVY)))))))))))))))))) I luv dim mad womens .
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 2/17/2010 10:30 PM (GMT -7)   
Navy, this is just ridiculous. You don't need to deal with this: not now, while you're so ill, and not ever. It's not good enough.

You have my sympathy.

Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 2/18/2010 7:46 AM (GMT -7)   
OMG that is ridiculous!!! I am mad with you. You are a surgical candidate for sure, and I know you have been suffering for soooo long. I pray the doc reads your report and gets you moved to a surgical consult soon. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Jan 2006
Total Posts : 3143
   Posted 2/18/2010 2:33 PM (GMT -7)   
Ohhh navy...wish I could help you out...I am angry for you too. I hope that showing them your reports finishes their argument. open mindedness would fix so many problems aaargh!
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....

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