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New Member

Date Joined Feb 2010
Total Posts : 5
   Posted 2/20/2010 5:01 PM (GMT -7)   
It was suggested that I post my question on this forum even though I have RA since you all may have more experience with this medication. My doc wants me to start orencia for my rheumatoid arthritis. The infusion nurse told me that it will "kill my immune system". Now I am afraid to start on it. Does anyone have any long-term experience?

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 2/20/2010 6:40 PM (GMT -7)   
I generally do not use wikipedia, but I have not heard of using orencia in crohns looks like it might be used in uc, but please think about talking to a pharmicist and your doc about it.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Veteran Member

Date Joined Feb 2009
Total Posts : 529
   Posted 2/20/2010 7:01 PM (GMT -7)   
I have never heard of this drug, it must be quite new in Crohn's treatment because I googled it and the study for Crohn's patients was only done in 2007, so I doubt that many people are using it. I've never heard it mentioned on here, and it would be even less likely that anyone would have any long term experience since it's so new, unfortunately. Since RA is an autoimmune disease, pretty much any drugs you'll go on will kill your immune system. You should be sure to get vaccinated for anything that you need and just try to take more care of handwashing and stuff like that. You should also get tested to make sure that you don't have TB. From what I am seeing googling it, it doesn't look to be any more dangerous than any of the other medications used to treat a similar severity. Sorry if this isn't personal experience, but I tried! lol. Good luck :)
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