This is cross-posted in the UC forum.
I am completely at the end of my rope. I don't know where to go from here and I will take any suggestions.
I have Crohn's Colitis and have been flaring since May of 09. My main symptoms are lots of diarrhea and blood. I have been on 40mg of pred since then, and have had a HORRIBLE time tapering off. I'm now on 25 mg and cannot get below that. I have tried just about everything (see my signature) but I can't seem to kick this. I started colocort enemas 3 weeks ago and that helped a lot at first, but then I tried to taper my oral steroids down to 22.5, and now it's BLOOD CITY and getting really hard to retain my enemas, so I'm going back up to 30mg today (GRRRR!!!) after talking to my dr. He is wanting to do a scope asap.
It's getting to the point where I have no options left. I am running out of money for prescriptions, I can barely go to work but I have to because I'm so poor, and I have lost so much weight that I cannot afford not to eat. I am 5'6 and 110 lbs. I am planning to eat as little as possible in the next few days and what I will eat will be like applesauce, chicken, carnation instant breakfast, potatoes, toast, etc.
I just don't know what else to do. Does anyone have any ideas? My gastro is GREAT but even they seem to be at a loss. I'm so incredibly dejected and ready for some hope. I would love ANY suggestions, please!
I should also add this: I don't think I have hemherroids; I've never had them before, but can doing enemas cause them? I'm getting really sore around there, although that could just be from the constant diarrhea...I don't know. I have done Rowasa enemas before and I did not tolerate them well at all--caused more blood and diarrhea. I know I don't respond well to 5ASAs but maybe part of it was that my colon just doesn't like enemas? I don't know. It seems to be getting worse as time goes on. At first I could retain the colocort all night but now I'm lucky if I make it 5 hours (sometimes lucky if I make it 10 minutes!). I'M SO FRUSTRATED!!!! :(
28 Year old Female
Diagnosed with Crohn's Colitis March 2000
Recent possible diagnosis of IBS-D
Tried Meds: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Rowasa Enemas, VSL #3 DS.
Currently on: 25mg Prednisone (Tapering SLOWLY from 60), 125mg Imuran, Psyllium Seed Powder, Colocort Enemas, Prenatal Vitamin, Vitamin B 12 Complex, Vitamin D/Calcium, Align Probiotic, Vesicare (for urinary retention).