more tests so soon?

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Date Joined Aug 2009
Total Posts : 377
   Posted 2/25/2010 12:29 PM (GMT -7)   
So my Remicade is not working correctly. I spoke with my GI who first wanted to bump up the dose to twice the amount. Then he backtracked and now just wants to keep it at the regular dose just in 5 week intervals. I was starting to feel better, then worse again, so I called to see if he would double the dose.

He left a message and said he wants to do more testing like endoscopy or colonoscopy. I just had a colonoscopy in July when I was first diagnosed and an upper GI scope. Is it really necessary to have another one? I guess what I don't understand is what is it going to do if I need to change my medication anyways? Does this mean he's thinking about surgery, which I'm so not ready for? I mean, I haven't been diagnosed for even a year yet. I just don't see why I need to do more testing when we know I'm flaring due to the blood tests and symptoms. Is this common to do these tests every time you flare?

Also, I'm not quite sure what an endoscopy involves. Are you sedated for it, and what is the difference between it and a colonoscopy ?

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Date Joined Nov 2003
Total Posts : 7119
   Posted 2/25/2010 2:07 PM (GMT -7)   
When I was first diagnosed, I had two colonoscopies six months apart. My GI wanted to ascertain why the medications I was taking seemed not to be working. My symptoms had gotten worse and he wanted to check if there was still inflammation in my TI. He said if there wasn't inflammation or other evidence of Crohn's, then my symptoms were the result of some other problem.

An upper endoscopy is the visualization of the esophagus, stomach, and the duodenum. The GI looks to see if there abnormalities in these organs. Many, but not all, GIs use sedation to do the upper endoscopy. My GI did my upper endoscopy at the same session he did the colonoscopy. The same sedation used for the colonoscopy was used for the upper endoscopy. Not all GIs will do both scopes at the same time. My upper scope revealed lots of problems in my stomach that were related to the inflammation in my small bowel.

I suggest that you talk to your GI and understand his reasons for wanting to do more scopes so soon. Ultimately you don't have to do tests you don't want to. However, if more scopes will help the GI evaluate your current condition so he can treat it more effectively, then it would be worth considering his reasoning.
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Date Joined Feb 2009
Total Posts : 529
   Posted 2/25/2010 6:10 PM (GMT -7)   
Wouldn't an endoscopy and an upper GI scope be the same thing? When I've had mine done, they gave me the option of being sedated or not. I chose without, although this time I'll probably just do it with sedation. It wasn't bad at all without sedation in my mind, I swallowed the scope on my first try and the only annoying thing was trying to breathe, although you can still breathe through your nose.
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