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Date Joined Oct 2009
Total Posts : 57
   Posted 2/26/2010 8:45 AM (GMT -7)   
well 2nd infusion done, still have the rash, now have a head ache and some joint pain and really tired.  Had a fever & chills last night but that broke.  Not as tired as yesterday so hopefully on the mend (fingers are crossed).  Anyone else had sparatic joint pain???  My jaw is killing me can't hardly open my mouth (which my husband doesn't nec think is a bad thing if i wasn't feeling crappy i'd hit him lol) my rt thumb my rt knee and my back are sore.  My back started durning my infusion it was so bad i couldn't sit and had to get up and walk around.  Anyone else encounter this at all???? is this something i should be going to the dr for or should the joint pain minimize over next couple days?????  The first infusion i was a little tired but this one was rough
Offically diagnosed with Crohn's Oct 2009, been living with bowel problems since 1990
Current meds: Remicade Feb 2010, Immuran, rel-pax, Topomax, Corticosteriod Suppositories, lantus, humalog, 2000u vit d, calcium, multivit, omega 3, Vit B

Regular Member

Date Joined Dec 2007
Total Posts : 414
   Posted 2/26/2010 9:02 AM (GMT -7)   
With my Crohn's arthritis it seems to affect a different joint each time! The jaw pain could be TMJ, seems quite common in crohnies, I remember there being posts about it on here and quite a few of us seem to have had it! Can be extremely painful and a nightmare when you can't open your jaw properly (mine could only open 13mm for over 4 months!) heat and and gently exercising the jaw can help, I also used Ibuleve gel on it (apparently topical NSAIDs are OK as you don't digest them but you might want to check this out with a doc first) and be careful how you sleep on it at night sleeping on the side of your face can cause your jaw to 'push out' to the side and make it more painful and stiffer in the morning as it kind of locks itself in that position.

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