Don't ever tell your GI that everything's great

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Veteran Member

Date Joined Jan 2006
Total Posts : 3143
   Posted 3/3/2010 8:02 AM (GMT -7)   
In sports, that is known as the kiss of death.  Well, I had an appointment with my new GI in February.  I proceeded to tell him what a lucky Crohnnie I am and how, even with not taking my Pentasa, I have not had much in the way of pain.  Ever since then, my symptoms have been growing.
Horrible burping.  Ever increasing nasty heart burn to the point last night that I could not swallow.  Gut pain and bloating from everything I eat.  Generally feeling crummy.  Blahhhhhhhhh.  Bad karma or just coincidence??? I don't care!!!!!
Believe it or not, I am looking at this as a positive in some ways.  I am scheduled for a scope on Friday for a fresh picture for the new GI.  Maybe he will see something that no other GI found.
Downside...I don't want to be so sick that the new guy starts pushing the big meds.  I really am a lucky one usually.  Only 1 OP hospital visit since my original surgery and very limited use of pred.  My main problems are not internal.
Now...will the bisicodyl (sp?) tablets make me toss cookies like they did last time......hopefully not as the prep is yucky enough then add this heartburn and potential for blech.......ok so I am rambling.  I should learn to just not say anything....that would make my husband happier smilewinkgrin  and maybe I would not curse myself again!
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....

Regular Member

Date Joined Mar 2009
Total Posts : 452
   Posted 3/3/2010 8:15 AM (GMT -7)   
Ok, so if you are worring about the prep..maybe try this.  On my last scope I was to do the Miralax/Dulcolax prep.  I hate Gatoraid with a passion so I mixed the Miralax with just water.  I can actually taste it though and I got so nausous that I could not get it down.  So I took about a total of 6 Dulcolax.  That actually cleaned me and my dr didn't complain that I was unclean inside.  My point is that the Dulcolax is so small that if you take it with just a drop of water you should be fine, and you don't have to deal with any nasty tasting prep.
In case your wondering my last GI before this one had at one point gave me the Dulcolax prep by itself since I can't get down any of the other preps.  I would talk to your own GI about it but it does seem to do the trick.  You can get some nasty cramping though but to me it is worth it.
36 yr old Male with Crohn's Disease since '88 - No Surgery yet
Been on almost every type of drug with bad results
Remicade since Nov 2009
Prilosec 20.6mg - 2x a day
Multivitamin daily

Veteran Member

Date Joined Jan 2006
Total Posts : 3143
   Posted 3/3/2010 8:18 AM (GMT -7)   
Thanks Java, but I think it is the dulcolax that made me sick. I never used it before the last scope and was never sick on the prep. A glass for, a glass for the sink, a glass for me, a glass for the sink until the whole jug of prep is gone always worked fine for me. Just nervous about the tablets as they were the new thing last time.
I get the Miralax for the first time...lucky me I love orange G2
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 3/3/2010 11:25 AM (GMT -7)   
Can you get a script for some anti nausea stuff just in case? I'm getting nauseous just thinking about YOUR jug.

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 3/3/2010 11:49 AM (GMT -7)   
Hey Habs another thought to the cause of why you are feeling bad.......It could possibly be a SIBO (small intestine bacterial overgrowth). I felt much the same way as you are right now and it turned out to be SIBO. Took 10 days of Cipro and it fixed it right up. Just a thought!! Good luck with your prep.

Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Jan 2006
Total Posts : 3143
   Posted 3/3/2010 2:15 PM (GMT -7)   
Thanks guys! I am thinking of taking only one of the 4 dulcolax they gave me. I really think this new prep is overkil for someone who worrys about it dripping out on the sprint to the potty hehehehe
I am doing Miralax for the first time, plus the dulcolax, plus magnesium citrate. I know my guy is knew to me....but I am now planning for a long night on the potty Thursday and keeping a bucket by my side just in case

Nanners thanks on the SIBO thought. I am going to mention it to the GI when I go in Friday

Oh and my MIL just called to whine to me about drinking all of the prep for her test Thursday...Ohhh you're just the person I need (even though I said you didn't know anything about scopes two days ago). Ohh is it really only supposed to be 2 hours to drink all of this. Ohh I don't know if I can. Can you have my son call me when he gets home (oh that's right you know he took his father grocery shopping so you want his attention back)
Listen honey 8oz glass every 15-30 minutes = 64 oz in about 2 hours. Not only a hypochondirac whiner, but she is also lousy at math !
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....

Regular Member

Date Joined Oct 2009
Total Posts : 57
   Posted 3/3/2010 2:46 PM (GMT -7)   
Im not sure if you have it where you are but im from Ontario Canada and my new GI uses this stuff called PICO SALEX for prep. Box has 2 packets in it take first one mix it with a cup of water drink it take second one something like 6 hrs later (same thing with a cup of water) thats it thats all. It was great you can gulp down a cup pluggin g ur nose in no time (tastes like orange i guess but i still dont like it but it isn't much). I have used this my last 4 or 5 scopes and it has been sooooooooooooo much better than all those other preps. mosts of them made me throw up just the thought of drinking them.

Not sure if it is available where you are but if it is its waaaayyyyy beter than all those older preps!
Offically diagnosed with Crohn's Oct 2009, been living with bowel problems since 1990
Current meds: Remicade Feb 2010, Immuran, rel-pax, Topomax, Corticosteriod Suppositories, lantus, humalog, 2000u vit d, calcium, multivit, omega 3, Vit B

Veteran Member

Date Joined Oct 2008
Total Posts : 1343
   Posted 3/3/2010 3:30 PM (GMT -7)   
Several years ago, I saw my PCP on a Monday and was doing great. I even looked healthy (good weight, good color in skin). On Wednesday, the ER called him and said I was there. He told them, "She in not! I just saw her and she was fine." They made him pick a surgeon for me, but he called the surgeon and told him, "Don't you touch her!" I loved that doctor, wish I still lived where I could see him.

Good luck on your prep and scope!
34 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: LDN, Pentasa, Effexor XR, Zyrtec
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, Vitamin D, Calcium, Magnesium, Coconut Oil, Garlic Oil, CoQ10, Enzymes
SCD since 12/01/08 - eating Stage 3 foods

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