I am so sorry about
your primary sclerosing cholangitis diagnosis. That must have been really tough to hear that one.
I totally understand what you mean about
"Tired of driving to doctors appointments, taking notes, getting blood work, waiting for prescript
ions, faxing results, getting doctors to communicate. I'm tired of being proactive, researching, asking questions, and trying to stay positive. I'm tired of people telling me how strong I am."
I go through periods of the exact same feelings. The only thing that gets me turned around is thinking of the alternative. If we stop being proactive about
our health care, no one else is going to do it with the same intensity we do. Therefore the results would likely be more dire due to the lack of vigilance.
Feel free to come and vent anytime you wish. Usually someone will be able to relate. Your post today described my feelings of late to a "T."
Moderator Crohn's Disease & Osteoarthritis Forums
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, asthma, severe allergy and a host of other medical problems.