So the time has come where my doctor has told me that I should have surgery to have my entire colon removed. I've been on pretty much every type of medicine out there. I've been on remicade, imuran, Humira, MLN0002 etc. Currently I am on 60mg of prednisone and Methotrexate.
At first I was pretty scared of the idea of the surgery and how different it would be to adapt to it. The MTX and pred is holding me over OK, but I still have to watch what I eat and the gas pain hurts a lot.
The doctors keep telling me that the "bag" is pretty easy to take care of and that I will have 10x more energy than I have now and will not have to be on my medicines anymore.
I would want to have a temporary one done, just incase I want it reconnected to go normally again. They also said they are very hideable and nobody will notice that I have one unless I pretty much tell them. I actually watched videos on youtube and I see that these things are by people's belly buttons and the bags are huge!
I guess what I am looking for is some input about the pros and cons of this surgery and what comes with it.
Are they a pain to take care of?
How do you hide it? Especially when swimming?
Also, I am worried about taking off work for 6 weeks. I do heavy lifting and I know my employer doesn't have short term disability or anything. So I am worried about how I will pay my bills since I don't have money saved up. Any suggestions would be great.