Wow - what an amazing response. For all this time I've been dealing with this bloody thing privately, and for the most part dealing relatively well I might add. But its those times when you have an embarrassing poo situation that I'm sure most of us have had, or the night of nearly unbearable pain, that I secretly wished I had someone to share this with.
I am a 37 year old male. I hold a very successful job and I'm doing well for myself. I'm recently married and planning a family. Relatively speaking, things are good. If the worst thing in my life is the unpleasant and embarrassing symptoms, a bit of pain here and there, then I reckon I've been dealt a fairly good hand. Certainly after being here in hospital for a month I can see there are PLENTY of people in much worse situations, who are dealing with their conditions well and living their lives! If they can do it, so can I..
Nanners, thanks for your words. Now that I'm older and more mature (unlike the rebellious 16 year old that refused to take regular medication) I have realised that taking a few pills every day is hardly the end of the world. The reality is that most people take something, so its no big deal. So I have to carry Imodium around in case I need it - who cares. Yeah and I need to always have ibuprofen and codeine on hand in case of pain - again, its not like I'm shooting heroin!
Newfoundsus, Zanne and Ides - It's so bloody good to know I'm not the only one. We've all been touched by this unfortunate disease, and we're all surviving.. in fact, it seems we're living pretty rich and normal lives. No reason to hide it or deny it - I'm thinking I will start to embrace this thing and make the most of it.
Grayeyedblonde - Yep, sometimes you just need a good wake-up call. For me, having had to deal with this latest flare up has reminded me that I do have this condition, like it or not, and despite the fact that I have learned to deal with it it is still there and will be there for the rest of my life. And if I want to avoid going through this again, then I better do all I can to prevent it. And that means taking serious look at my diet, lifestyle and my attitude. I think I am prepared to do this. When it first happened, and then I was relatively ok for 20 years I just assumed that it was all behind me. Now I accept the fact is that it might very well happen again - and if I continue to ignore it with my casual attitude, it may happen in 5 years this time. And I am not prepared to put myself, or my wife through it again. No matter what.
sr5599 - Seeing her live through my pain was a real eye-
opener. I can imagine that it was probably just as bad for her as it was for me.
mighty.mouse.xx - Crohn's seems to manifest itself differently in everyone. My symptoms aren't really that bad. Despite having lived through two hospitalisations, I live a normal life and it doesn't really affect me that much. You may never need surgery! Fingers crossed. If you do, again its not so bad. But from what I have read, there are many things that we can do to manage this disease and help avoid symptoms or the need for surgery. Diet, stress, meds - be diligent, and you'll be fine. As for the embarrassment, yeah thats a pain in the arse no doubt. I can live with the pain, but I struggle with the fact that I occasionally have an accident or need to urgently go to the toilet.. the smell, etc etc. Its not pleasant any means and it gets to me. But I have learned to deal with it. It happened pretty gradually, but you just tend to adjust. There are always toilets around, and with a bit of planning you can avoid any major embarrassing situations. And when something happens, the fact is that it seems a lot more of a big deal to you than anyone else. Maybe just try and laugh it off. Even people without CD have had similar embarrasing situations, so why should we have to hide it..
AzJohnny - You are absolutely right. It just seems such an all encompassing thing when you're living it, that you dont realise that its really no big deal. The harsh reality is that everyone has their little embarrasing secret, their regular meds, their recurring pain, their scars, whatever - we're not all perfect, so lets just accept it and move on.
Grandpato2 - Looking forward to hopefully helping out someone here as well as drawing my own help in this new stage of embracing this disease and dealing with it like an adult! I was embarrassed to share my symptoms with my wife - isnt that ludicrous. Now, in the past four weeks she has been at my side helping me go to the toilet, fix leaks in my drain and all sorts of stuff that I thought she'd find disgusting. To my amazement she embraced it - after all she's my wife.
Thanks guys for your kind words and support.
Mesasal, B12 injections, occasional iron tablets as required, and trying to eat a healthy diet
Post Edited (Flipside) : 3/9/2010 2:26:13 AM (GMT-7)