Posted 3/12/2010 1:53 AM (GMT -6)
I admire the way you are dealing with your particular "differences", which is really all they are - I still don't like the word disease or illness. I guess one thing I've noticed is that you get wiser and more mature with age - making it easier to accept and deal with these things. As I recall it all appeared totally insurmountable to me when I was a kid - I would have dreamed of admitting to my mates that I have poo problems, or that I had an illeostomy bag.. and that caused so much unnecessary angst and pain for me. Now that I'm older, I've admitted it to a few people close to me and I have been amazed about how easily they have accepted it. In the end, it all seems so much more of a big deal for us than anyone else.
Also, and this might be controversial, but I think the world has changed in the past decade or two and perhaps become more tolerant. At least it appears that way to me. Being "different", whether that be gay, ethnic, wearing glasses, overweight, in a wheelchair, WHATEVER, is more accepted now.. What do you think? Maybe it just seems that way to me. Maybe its all related to the fact that I've finally let this cat out of the bag, which has lifted a load off my mind..
Mind you, I must admit I have also been occasionally disappointed with the way some people have reacted to my condition. Some people tend to be a bit callous, particularly if they dont understand.. ie, one mate of mine discovered my illeostomy many years ago, which to my horror had leaked, and was a little harsh about it. This greatly contributed to my hiding it from then on....
- 36yo male. DX in 1990 at 16yo. First re-section in 1990, lost most of small bowel - Anastimosis leaked after surgery, resulting in 2nd surgery which ended with illeostomy for 3 months.
- Managed well on Mesasal for 20 years. Only CD symptoms are abdo pain from bad eating and flare-ups once every couple/few months.
- Second hospitalisation Feb 2010, due to bowel performation. Had another re-section, and abdo lavage. Some minor complications including leaking which required (now) two drains, antibiotics and extended hospitalisation.