Hi Mighty Mouse, and welcome to the board. My daughter was diagnosed with Crohn's last year about this time. She is only 10 years old (as of next week). I don't have Crohn's myself, but as a parent to one so young I share in every moment of this with her so I understand how tough this can be. First thing I will say is that if you are unsure or unconvinced of what your doctor is telling you, seek a second opinion from another doctor. I have read this many times over on this board. Secondly, as you know, at this time there is no cure for Crohn's, no magic pill unfortunately, that will make it go away. There are however alot of treatment options which include everything from surgery, to RX meds, to supplements, to enteral nutrition, to dietary changes. What works for one does not always work for another. Frustrating, I know.
Right now my child is on Pentasa, Entecort (will be weaning off soon so says Doc), and 5 weeks into starting 6 mercaptopurine. I was doing what I thought I could to keep her off the 6MP, but she is young...will not adhere to strict dietary changes and was continuing to lose weight and color in her face. As of today, she is doing well...not sure why is the kicker. 6MP? maybe. Increased dose of Vitamin d3? maybe. I guess time will tell, and I am praying that "time" is one of remission.
As for remicade, her doc told us recently that studies are showing that the younger you are when you start on it, the more effective it will be at getting and keeping you into remission. That said, we still opted for the 6MP at this time because her disease is (fortunately) not so severe that it warrants remicade. Is yours? Our Doc holds it out there as if it's our "last resort" med.
As for diet, if you're willing to make changes why wait for a nutritionist? Have you read Elaine Gottschall's book "Breaking the Vicious Cycle"? If not, you may want to pick up a copy and consider this for yourself. It has helped many here (not my child as she won't do it), but again...not for everyone.
Also, are you taking Vitamin D3? If not, you may want to google "Vitamin D3 and Crohn's". I've been reading some amazing things lately, not to mention an article I read earlier about the importance of Vitamin D3 to an unborn baby. It seems most Crohnie's are deficient in D.
Good luck. Keep posting. It helps alot.