I'm on Remicade and Methotrexate, but I'm flaring pretty badly. I was in the hospital last week, because my fevers were out of control, 103.2, and I was dehydrated and almost delirious. My CRP was 150.
The doctor did a test to see if I have developed antibodies to Remicade, but it takes a week for the results. They doubled my dose of Remicade while I was in the hospital, which temporarily brought my temperature down, but now not even a week later, I'm starting to get fevers again.
My GI is out of town, so I'll hopefully get in to see another GI, since they told me to call if my fever got over 100, which they are 101.3 right now. I'm assuming they'll try Prednisone, even though before it didn't really do much for me. But in your experience, if you get fevers with your Crohn's, does Prednisone bring them down?
Also, my GI mentioned dosing with more Remicade (if I haven't developed antibodies yet), so not a regular schedule but more of a loading type schedule. Has anyone done that before, and if so, has it been successful.
One last thing, my GI planted the seed in my head of possible surgery. That scares me to death, especially considering I haven't even had this disease for a year and already they can't get things under control with the hard core meds. I'm confused about surgery. It doesn't really guarantee remission, does it? (I guess nothing does). And, I've heard that once you have surgery, it usually leads to more surgery.
I'm really freaking out. Does anyone have any words of encouragement?