I've been on cimzia since 5/09. I saw improvement but not great. Had an abcess 9/09, treated with antibiotics. since 10/09 feeling wonderful until my first gallbladder attack 11/09 (I thought I had perforated). I did have pain in my leg muscles from the very beginning, ranging from being a nuisance to severe. By Dec 09/Jan 10 began showing signs of MS, peripheral neuropathy and the muscles in my legs and my feet were severely painful, but blood work showed crohn's was in remission...what to do?my GI said I had to stop the Cimzia immediately but I suggested spacing the dosage, what have I got to loose? around Jan 20th I went to one shot every other week and all those side effects are completely gone. I even feel as tho one shot a month could hold me, but not ready to risk that yet. My GI is amazed as he says it makes sense, since all other meds are tapered down once remission is achieved, why not this one. So far blood work confirms that I'm still in remission, no changes since spacing the shots to every other week. Now my problem seems to be short bowl syndrome as the healing has caused shrinkage resulting in malabsorption. I'm not loosing weight and blood work shows vitamins are in normal range yet I have cracked/peeling corners of my mouth. I have lots of energy, feel wonderful, it just kind of a nuisance. I've really been hitting the vitamins hard, and it is improving, also applying zinc oxide around my mouth.
I do get some real obnoxious gas but no pain. I've been taking Xiflaxin which totally cures it, but not sure if this is going to be an on going thing or not. Overall, Cimzia is the first drug that works for me