Hello, new here!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Mar 2010
Total Posts : 105
   Posted 3/11/2010 8:09 AM (GMT -7)   
I have a new diagnosis of Crohn's disease.  I have had symptoms going on now for about 2 months.  It all started with severe right lower abdominal pain, nausea, vomiting, diarrhea.  I was admitted to the hospital when I went to the ER because they did a CT scan that showed "acute inflammation".  I was started on IV antibiotics for colitis.  I saw the GI dr on call at the hospital who murmured to his nurse as he left the room "looks like maybe early onset Crohn's" to which the nurse said "oh I hope not!".  Not a good sign to me.  I was supposed to stay on IV antibiotics for 48 hours then have a colonoscopy if not better by then, but my mom was killed in a car accident when she was on the way to see me at the hospital so I decided to go home instead and take antibiotics by mouth so I could be home with my family.   I had the colonoscopy a couple of weeks later and the area where the small intestine meets large intestine was almost completely obstructed and very inflamed.  Well I am still no better now.  I have been on Entocort then switched to Prednisone and now started on Pentasa.  I can't stand to eat anything.  I get severe, intense cramping that causes me to double over and stop whatever I am doing.  I saw the GI doctor the day before yesterday and he thinks I am basically obstructed now.   He sent me to the surgeon who says he would have to take out the right side of my colon and re-attach small and large intestines.  But I was warned that if I start vomiting or have sudden intense pain that is worse to go immediately to the ER and I will have to have emergency surgery, which would require a temporary ostomy for 3 months before being able to have an anastomosis.  My GI says if I am not better in 7-10 days on the Pentasa I need to go ahead with surgery.  This is my 2nd day on it.  Has anyone had any experience with Pentasa helping with an obstruction????  Please any advice is welcomed!!

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 3/11/2010 8:50 AM (GMT -7)   
Hi ALgirl and welcome to Healingwell. Sorry you have to be here though. First off, my deepest condolences on the tragic loss of your Mom. Being sick and in the hospital and then to have that happen, I am just so sorry.

I have had two resections and no I personally do not think the Pentasa is going to help your obstruction. I do agree though if you start getting pains that come in waves much like labor pains, can't move air or stool out , extreme bloating, and start vomiting, get your butt to the ER.
Now the Prednisone might help if there is alot of Inflammation. Am I understanding you have only been on the Prednisone two days? If so, give it a few more days and see if it helps.

Stay with us, we do care and you will find alot of support here.

Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Regular Member

Date Joined Mar 2010
Total Posts : 105
   Posted 3/11/2010 8:56 AM (GMT -7)   
Thank you so much!  Actually I started the prednisone on 3/4 so this is my 8th day on it.  I just started the Pentasa yesterday.  Sorry I wasn't very clear on that.  blush

Regular Member

Date Joined Feb 2009
Total Posts : 269
   Posted 3/11/2010 10:57 AM (GMT -7)   
Hi ALgirl
Welcome to the site, I am sure that you will get lots of support here. I am sorry that you are going through so much at the moment.  My heart goes out to you, I am so sorry for your loss.
I cant help with your question but there will be lots of people along soon to help you with that.
Diagnosed 2005.  41 year old female living in UK
Current medication  -  infliximab infusions, ranitidine, Vitamin B12 injections, anti depressants

Elite Member

Date Joined Jan 2005
Total Posts : 24909
   Posted 3/11/2010 2:24 PM (GMT -7)   
Welcome to HW..I TOTALLY agree that the pentasa will not help with the obstruction ..plz do keep us posted on how you are doing glad you joined us .....LYN

I am so so sorry to hear of your mom my heart n prayers are with you
                                        Long  Time Member of da Family
   Crohns..Pyoderma gangrenosum,..Anxiety / panic..Fibromyalgia,,Neuropathy...Deaf...Seizures
                        I DONT COMPLAIN...OTHERS ARE WORSE OFF THAN I AM                                   
                                Donate to www.healingwell.com.
                        HW FRIENDS N FAMILY TRULY DO UNDERSTAND                                                 

Post Edited (Howlyncat) : 3/11/2010 2:27:03 PM (GMT-7)

Regular Member

Date Joined Dec 2007
Total Posts : 414
   Posted 3/11/2010 3:11 PM (GMT -7)   
Welcome to the board, this really is the best possible place you could have found for support. It sounds like your having a terrible time with things at the moment. I am so sorry about your mum. Will definitely be thinking of you and your family and hope you have some relief soon. I have also had the emergency obstruction warnings read out to me and fortunately it never came to that and I was able to recover each time with medicines alone and not surgery (though have been warned it would definitely be an ostomy situation if it came to it) I hope the medicines start to give you some relief and failing that that surgery will. Please keep us updated, will be thinking of you.

Regular Member

Date Joined Mar 2010
Total Posts : 105
   Posted 3/11/2010 4:03 PM (GMT -7)   
Wow, thanks to everyone.  This seems to be a terrific site for support.  I really appreciate it!

Veteran Member

Date Joined Dec 2009
Total Posts : 681
   Posted 3/11/2010 9:20 PM (GMT -7)   
ALgirl welcome to healing well. I'm sorry your going through learning about this disease at such a difficult time. Im sending you my thoughts and prayers for a good diagnosis and some peace of mind.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, December 14, 2017 8:03 PM (GMT -7)
There are a total of 2,905,596 posts in 318,874 threads.
View Active Threads

Who's Online
This forum has 158229 registered members. Please welcome our newest member, MuttersJ.
359 Guest(s), 8 Registered Member(s) are currently online.  Details
Spring, Lynnwood, ks1905, Joyb4, Adventureuc, Cajun Jeff, MuttersJ, Lanie G