Open main menu ☰
HealingWell
Search Close Search
Health Conditions
Allergies Alzheimer's Disease Anxiety & Panic Disorders Arthritis Breast Cancer Chronic Illness Crohn's Disease Depression Diabetes
Fibromyalgia GERD & Acid Reflux Irritable Bowel Syndrome Lupus Lyme Disease Migraine Headache Multiple Sclerosis Prostate Cancer Ulcerative Colitis

View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders Bipolar Disorder Breast Cancer Chronic Pain Crohn's Disease Depression Diabetes Fibromyalgia GERD & Acid Reflux
Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Ostomies Prostate Cancer Rheumatoid Arthritis Ulcerative Colitis

View Forums A to Z »
Log In
Join Us
Close main menu ×
  • Home
  • Health Conditions
    • All Conditions
    • Allergies
    • Alzheimer's Disease
    • Anxiety & Panic Disorders
    • Arthritis
    • Breast Cancer
    • Chronic Illness
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Migraine Headache
    • Multiple Sclerosis
    • Prostate Cancer
    • Ulcerative Colitis
  • Support Forums
    • All Forums
    • Anxiety & Panic Disorders
    • Bipolar Disorder
    • Breast Cancer
    • Chronic Pain
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Hepatitis
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Ostomies
    • Prostate Cancer
    • Rheumatoid Arthritis
    • Ulcerative Colitis
  • Log In
  • Join Us
Join Us
☰
Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

It's confirmed, my surgery is on Tuesday....

Support Forums
>
Crohn's Disease
✚ New Topic ✚ Reply
12
❬ ❬ Previous Thread |Next Thread ❭ ❭
profile picture
Valerie3
Veteran Member
Joined : Feb 2009
Posts : 529
Posted 3/12/2010 2:09 PM (GMT -8)
Hey guys, a while ago I said I needed surgery but it wasn't scheduled yet. I got the call yesterday that I'm going in on Tuesday! ahhh. I'm super nervous. I thought they would give me a bit more notice, but I guess it's for the best. I went in for my pre-op today, they said that if all goes as planned, I'll be out of the hospital on Friday morning, so fingers crossed for that. They're doing my surgery through a single incision in my belly button. Has anyone here had any experience with this type of surgery? Usually, it seems like everyone I've seen post here has done it the regular laprascopic way with multiple incisions. They told me that this is a pretty new way of doing it and they don't do it this way for most people. Hopefully everything goes as planned, because if it works out, I'll only have a small scar going down from my belly button, which would be great.

The doctor also told me that more than likely, I'll be off medication for 6 months after my surgery and they'll watch my blood counts to see if I need to be put on anything sooner. He said he wants to give my immune system a chance to reset itself. He said after that, he wants to put me on either Remicade or Humira - I'm leaning towards Remicade since I don't like the thought of giving myself injections haha. He also said he was going to do a colonoscopy 3 months after my surgery to see how everything is healing. How soon after surgery did you guys go back on medication? I was kind of surprised because I thought that I would be going on Remicade right after.

I'll keep you guys updated, I'm quite nervous but looking forward to hopefully feeling better afterwards as well. It'll be my first surgery, which I definitely wasn't expecting only a year after being diagnosed!

Oh yeah, and I was saying how on my endoscopy it was showing something in my duodenum. I've got Crohn's there too. yay!

Post Edited (Valerie3) : 3/12/2010 3:19:49 PM (GMT-7)

profile picture
Rider Fan
Veteran Member
Joined : May 2008
Posts : 1447
Posted 3/12/2010 3:15 PM (GMT -8)
Good luck Valerie, will be thinking of you. I can't remember what part they are resecting. Do they think it's inflammation or stricture?
profile picture
Valerie3
Veteran Member
Joined : Feb 2009
Posts : 529
Posted 3/12/2010 3:32 PM (GMT -8)
I've got inflammation, a perforation, abscesses and a fistula, all between my ileum and ascending colon. Not sure exactly how much they're taking out, haha.
profile picture
Peaceandhappiness
Regular Member
Joined : Mar 2010
Posts : 131
Posted 3/12/2010 3:52 PM (GMT -8)
Here's luck to you and good well wishes! Sorry you have to go through it! I still need to figure out what all these words mean (fistula) and all that, but I'm new.
profile picture
Wolfie40
Veteran Member
Joined : Dec 2008
Posts : 947
Posted 3/12/2010 4:20 PM (GMT -8)
Good luck! I hope all goes well.
I did not go on any meds for about 1-2 months.
I did find out 10 months later that my Crohns had come back and my next choice of meds was Remicade or Humira. I chose Humira because I could give myself the injections as opposed to Remicade and sitting for hours with an IV in your arm.
I hate needles and Humira has a epipen so you don't see the needle. If i can give myself injections, anybody can.
profile picture
ALgirl
Regular Member
Joined : Mar 2010
Posts : 105
Posted 3/12/2010 4:22 PM (GMT -8)

Good luck to you.  I am sorry you have to do it but hope you have a speedy recovery and feel lots better quick!  I am probably heading in the same direction and I really feel for you. 

profile picture
broomhilda
Veteran Member
Joined : May 2007
Posts : 1495
Posted 3/12/2010 4:26 PM (GMT -8)
Valerie- Old vet here...Good Luck! I had my tubes tied that way and in comparison to the full incision from belly button to pelvic bone for the resection it was a breeze. Expect some cramping especially for the first few days. The gas they pump you up with has to disipate in the body and the only way to get rid of it is to WALK...WALK...WALK even though you won't feel like it. The abcesses & fistulas are a horse of a different color. I haven't experienced those yet. I was started on Remicade just prior to surgery and continued on schedule every 6 weeks after surgery. However, I am a moderate to severe case and initially it was very difficult to get my symptoms under control. I later built antibodies to the remicade and I am now on Humira weekly. The injections(needles) themselves truly are not bad because they do not go into the muscle, only the skin (much like a diabetic insulin injection). Hang in there...relief is on the way!
profile picture
Valerie3
Veteran Member
Joined : Feb 2009
Posts : 529
Posted 3/12/2010 4:42 PM (GMT -8)
Thanks :) They said for the first 2 days I'll have an epidural so I guess that should help quite a bit with the pain. They said they'll get me to start walking the same day for a couple of minutes at a time, get you to try to sit up in chairs, etc. I'm hoping that I'll be able to leave by Friday like planned. I always thought that people said that Humira was really painful going in?? I may reconsider it. I guess I've got a while to think about my options. I feel more comfortable getting infusions rather than giving myself shots, but it is quite time consuming to have to keep going to the hospital for infusions.
profile picture
broomhilda
Veteran Member
Joined : May 2007
Posts : 1495
Posted 3/12/2010 4:48 PM (GMT -8)
It's not the needle, it's the drug IN the syringe that stings like fire! I'd still rather do the Humira at home that the infusions. I had to do them in an oncology room (depressing), but did keep things in perspective.
profile picture
Rider Fan
Veteran Member
Joined : May 2008
Posts : 1447
Posted 3/13/2010 8:42 AM (GMT -8)
Valerie, it stings for about 5 seconds and then it's done.
profile picture
Nanners
Elite Member
Joined : Apr 2005
Posts : 14999
Posted 3/13/2010 8:49 AM (GMT -8)
Valerie sending you good wishes for your surgery and that it leads you to a long long remission. Remember to take maintainence meds afterwards, so you don't need a repeat. Hugs~
profile picture
Valerie3
Veteran Member
Joined : Feb 2009
Posts : 529
Posted 3/13/2010 10:33 AM (GMT -8)
Thanks everyone! I really hope that this surgery keeps me in remission for a long time. I've basically been sick nearly constantly for the past 2 years and it's really taken a toll on me. I'm still a little bit concerned about why my doctor only said that he wants me to start taking Remicade/Humira 6 months after my surgery, I'm worried I'd start to flare again in that time. He mentioned "resetting my immune system", which I guess makes sense, since I've been on Entocort for a year and Flagyl and Cipro for almost 3 months now, so I'm pretty run down. You guys are making me feel a bit better about the thought of taking Humira though, I'm definitely starting to consider it now, because my doctor said he thinks I'd be better off on Humira than Remicade.

Did any of you guys get epidurals for your surgeries? I always thought you got pain meds by IV from what I've seen around here, but they said I'll have an epidural for 2 days and then oral pain meds afterwards. I'm also kind of worried about the epidural because I have a tattoo on my back and I've heard that some anesthesiologists don't like to give epidurals where you've got a tattoo. I sort of forgot to ask about it yesterday because I was so caught off guard by being told that I was getting one, haha.

I'll let you guys know how everything went as soon as I got out of the hospital. I'll post pics of my lovely scar after, I'm hoping it won't be too big, since it seems like it's going to be bigger than I originally thought.
profile picture
80sChick
Veteran Member
Joined : Oct 2009
Posts : 1054
Posted 3/13/2010 4:10 PM (GMT -8)
Just wanted to say good luck on your surgery!! I hope your recovery is quick :) I'm sure it will provide much-needed relief.

I've been on Humira and it really only burned for a tiny bit...no biggie! Plus you control the syringe so if it burns too much, just slow down :)
profile picture
Julia Hill
Veteran Member
Joined : Mar 2008
Posts : 568
Posted 3/13/2010 5:16 PM (GMT -8)

Hi Valerie,

I hope you have a speedy recovery from your surgery.  Make sure you talk with your surgeon about being on entocort for the last year - you will require steroids.  Lets hope you never have another abscess and/or fistula also.

Take care,

Julia

profile picture
Grandpato2
Veteran Member
Joined : Dec 2009
Posts : 681
Posted 3/13/2010 10:29 PM (GMT -8)
Valerie wish you all the luck in the world for your surgery. I just had my gall bladder remove by scope and had 3 incisions. The one at the belly button was 2 inches in length. Let's hope your is as short.
profile picture
Wolfie40
Veteran Member
Joined : Dec 2008
Posts : 947
Posted 3/14/2010 5:21 AM (GMT -8)
I have one bit of advice. Walk,Walk, Walk as much as possible. The worst pain that I had was that darn air bubble in my shoulder from when they pump air into your abdomen.
I would do laps around my floor dailey, everyday a little bit longer. Don't expect this on the first day though as I could barley walk 50' and back.
Best of luck and i hope that you have a speedy recovery.
profile picture
Valerie3
Veteran Member
Joined : Feb 2009
Posts : 529
Posted 3/14/2010 7:45 AM (GMT -8)
Thanks for your support everyone. Another funny thing is I actually (THANK GOODNESS!) don't have to do a prep for my surgery!! lol. All I need to do is a liquid diet tomorrow, and stop drinking water 2 hrs before I come to the hospital, which I'm super happy about. I don't really get how that works though, means I won't be cleaned out for the surgery? Seems kind of unpleasant for them.
profile picture
Nanners
Elite Member
Joined : Apr 2005
Posts : 14999
Posted 3/14/2010 8:22 AM (GMT -8)
My one tip in the hospital is to ask for a pca pain pump. That way you can dose your pain meds as you need, instead of waiting for the nurse to come give it to you. Ask the anethestiologist when they come see you before your surgery for the pca pump. I had an epidural one time, but it wasn't placed correctly and I was in alot of pain. So now I always ask for the pca pump. Also, walk as much as you can, that really helps. I even heard that chewing gum is good to help wake up the bowels afterwards too. Good luck!
profile picture
Valerie3
Veteran Member
Joined : Feb 2009
Posts : 529
Posted 3/14/2010 10:22 AM (GMT -8)
Awesome , I'll get some gum. I hope they give me a pain pump instead if I ask for one, I would much prefer it over an epidural.
profile picture
MMMNAVY
Veteran Member
Joined : Jul 2006
Posts : 6927
Posted 3/14/2010 10:52 AM (GMT -8)
(((((((((Valerie))))))))))))))))))))
Good Luck!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
profile picture
pillpopper
Regular Member
Joined : Jan 2009
Posts : 209
Posted 3/14/2010 10:59 AM (GMT -8)
What's this world coming to?
No prep???
Hope you have a quick recovery!
profile picture
Valerie3
Veteran Member
Joined : Feb 2009
Posts : 529
Posted 3/14/2010 11:02 AM (GMT -8)
I know! They usually do prep at my hospital, but the surgeon told me I won't need to do it. I'm wondering if it's because he's doing mine with a single incision?? It's the only difference to how it's normally done. It was so funny at the hospital, everyone knew who I was because they're doing mine in a special way. One of the residents was explaining the surgery to me, and when I told him mine was only a single incision, he was like "oh so that's YOU that's having that one done" hahaha. Hopefully they'll be able to actually do it that way, it's quite uncommon as far as I know not to have multiple incisions, or at least one larger one.
profile picture
debilitated
Regular Member
Joined : Jan 2010
Posts : 448
Posted 3/14/2010 11:02 AM (GMT -8)
Valerie, According to my G.I At the university of Chicago. With some of the best G.Is in the country said there is STRONG data showing you CAN go back to remicade after stopping. Plus. Data shows that remicade after surgery is a real good way to form a good chance at reducing new surgery.
profile picture
Valerie3
Veteran Member
Joined : Feb 2009
Posts : 529
Posted 3/14/2010 11:04 AM (GMT -8)
Debilitated - I actually haven't been on Remicade yet. I'm on Entocort, Cipro and Flagyl right now. He was saying he wanted me to start Remicade in 6 months, but that's why I was wondering.. I feel like it should be sooner than that. I'll be curious to see his reasoning behind waiting, because I figured he would want to put me on it almost immediately.
profile picture
debilitated
Regular Member
Joined : Jan 2010
Posts : 448
Posted 3/14/2010 11:40 AM (GMT -8)
http://www.medicalnewstoday.com/articles/137418.php
✚ New Topic ✚ Reply
12


More On Crohns Disease

How I Refused To Let Chronic Illness Steal My Dreams

How I Refused To Let Chronic Illness Steal My Dreams

Learning to Live With Crohn's Disease

Learning to Live With Crohn's Disease


HealingWell

About Us  |   Advertise  |   Subscribe  |   Privacy & Disclaimer
Connect With Us
Facebook Twitter Instagram Pinterest LinkedIn
© 1997-2023 HealingWell.com LLC All Rights Reserved. Our website is for informational purposes only. HealingWell.com LLC does not provide medical advice, diagnosis, or treatment.