freshest member of Team Crohn's - my long overdue Dx

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toilet slave
New Member

Date Joined Mar 2010
Total Posts : 1
   Posted 3/16/2010 3:45 PM (GMT -7)   
Good Day All,
Well, I hid as long as I could, but finally flared so bad I thought I might die. whew
Travelled to next city to a university hospital and got a black-n-white diagnosis.
Was able to get on-the-spot flex-sigmoidoscope, but alas no anesthetic for my tender bowel. cry
-blood showed inflamation markers through the roof
-C-reactive protein greater than 100
-mouth sores (thought I was brushing and flossing too much)
-skin tags of Crohn's perianal disease (thought I had 'roids)
-aphthous ulcers in rectum
-granulomas ruled out UC
-bro and sis have Crohn's
-been bleeding on the bowl for about 20 yrs off/on
So, I've been mostly sick for a couple decades...
but now finally have my Dx: Uncle Crohn's
Things feel real difficult now. I do not have a new disease, that is an old 'friend'.
What I am struggling with is the weight of this specific label hung on me, for the rest of my days.
Funny, but knowing I am in shock, does not allow me to avoid moving through the stages of shock.
Kinda overwhelmed in these ouchy moments.
These strong and scarey drugs have not helped much yet...
so, I am still quite violently sick, plus the added negative side effects as a bonus.
Bleeding, snotting, cramping, dizzy, anxious and nauseous!
Been living on mostly liquids for about 6 weeks. Pushing vitamins and Ensure all I can.
Prednisone makes me hungry like a bear, but I am afraid to eat. (catch 22 and heck to pay if I do)
I have zits like a teenager, restless, panic attacks and an extra chin!
My brain knew, but wasn't telling me...  All my layers of denial are falling away.
Looking forward to better days.
I hope you feel well,
and I hope to see you around here,
ps Tomorrow is promised to noone...

Post Edited By Moderator (Nanners) : 3/17/2010 7:33:56 AM (GMT-6)

Veteran Member

Date Joined Dec 2009
Total Posts : 681
   Posted 3/16/2010 6:06 PM (GMT -7)   
 scooltoilet slave welcome to healing well from another canuck! That's an appropriate name you have. lol I understand how it sucks to have a diagnosis of crohn's but at least the dr.s now can put together a plan to treat you. Look forward to interacting with you here in the future Rob

Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.

Regular Member

Date Joined Mar 2010
Total Posts : 131
   Posted 3/16/2010 7:14 PM (GMT -7)   
I'm sorry! I hope things get better. It's always difficult to come to terms with a health condition. Heck, I didn't want to admit I had thyroid problems for years or that I have to take meds for that for life and be tested and keep an eye on my enlarged thryoid for life (I'm way past that now).

I don't wish health problems on anyone! I wish everyone could/would be well. If anything we can teach others about our diseases and hope for cures and awareness for people in the future.

Bless you!
-Mom of a preschool boy and teenage girl and wife to a wonderful man.
Hypothyroid, newly dx'd Crohn's, Gerd. I love to look for natural ways to heal first, conventional ways second and keep my faith.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 3/17/2010 6:36 AM (GMT -7)   
Hey Toilet Slave and welcome to Healingwell. Sorry you have to be here though! Now that you have your diagnosis, I hope they are able to find the right treatment for you and you get feeling better soon! Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Elite Member

Date Joined Jan 2005
Total Posts : 24909
   Posted 3/17/2010 10:05 AM (GMT -7)   
Welcome fellow Ontarian...i am so sorry for all you are going thru but you sure found a great community to get support from.....i am in London area hv a great GI n family doc....i sure hope you get feeling better real soon..keep posting...huggles..lyn
                                        Long  Time Member of da Family
   Crohns..Pyoderma gangrenosum,..Anxiety / panic..Fibromyalgia,,Neuropathy...Deaf...Seizures
                        I DONT COMPLAIN...OTHERS ARE WORSE OFF THAN I AM                                   
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                        HW FRIENDS N FAMILY TRULY DO UNDERSTAND                                                 

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