I can only imagine....the idea of my kids going through anything remotely what I've gone through (and am continuing to, worsening/expanding to a new sub-disease with each year) is one of my worst fears. Having to put up with all the doctors and meds must be a *tremendous* challenge at 2.5 years old! Mine are 4 and 2 currently; I can't imagine getting either of them through all that, getting them to take their meds, etc....
I'm sitting here trying to come up with something to say that isn't negative....but it's difficult! My condition got much worse in the year before my son (older of the two) was born, and as long as he's been alive -- even before he was actually born -- I've struggled with the fear that he'd end up with the same things I have if not worse. There are a slew of things I can do to improve his odds, but the medical science behind these auto-immune conditions will have to advance CONSIDERABLY before either of my children are likely to get through life without at least some problems in the same vein as mine, given that both my parents and my sister all have some form of GI disease. I'm the only one who has developed Reactive Arthritis so far, probably because I'm the only one who's had bad infections (staph). But the potential undoubtedly exists in my parents/sibling as well, and odds are that I've passed on enough of the relevant genes to give my kids nearly or exactly the same risk factors.
I can avoid giving them antibiotics unless absolutely necessary.....I can decline to have them undergo tonsil/adenoid surgery as I did when I was 8....I can watch their allergies and mold/dust/pathogen exposures like a hawk...I can help them learn how to do/take any number of other things to support their immune systems' proper functioning....but none of it guarantees anything. And that's terrifying. After all, one of the main reasons I endure despite the horrible pain and other symptoms I suffer is because I want to do right by them!
All I can really think to do right now is to sympathize with you, and encourage you to vent, update us, etc as much as you are able/willing to do. Also, if any of the med sci, herb/natural/supplement info, and so forth that I've been forced to learn over the years might be of any help to you....please don't ever hesitate to ask! It bothers me beyond words to think that there might be any way in which your daughter's difficulties might be lessened that she isn't able to take advantage of just because nobody's brought it to your attention.
Know that we're thinking of you and your child, and that huge advancements will be made in these diseases over the next generation. With any luck, they'll be a thing of the past....or at least far more reasonably treatable....well before she reaches anything like our ages.
Conditions: Reactive Arthritis (AKA Reiter Syndrome), Crohn's Disease, Chronic Pelvic Inflammatory Syndrome, Sacroiliitis, Costochondritis, As Yet Unknown MS-Like Relapsing/Remitting Neuropathy, and a partridge in a pear tree.
Medications: Currently not that many are taken daily, but there are many at my disposal for part-time use. Low dose pain medication, after years at high doses. Working on innovative ways of taking lesser-known pharmaceuticals and non-prescription supplements to maximum benefit.