severe leg pains HAVE U GOT IT TO??

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Regular Member

Date Joined Mar 2010
Total Posts : 21
   Posted 3/22/2010 3:49 AM (GMT -7)   
ive been having constant leg pains for the past 2 months my gp tells me its related to the crohns and says theres nothing he can do.....
has anybody else had the same problem. the pain is so bad i feel numb and feel like i cant walk.....
diagnosed with crohns since 2003
previous med. pentasa imuran prednisone remicade and many more :) all didnt work
now on humira
trying to fall pregnant (fingers crossed)  

Regular Member

Date Joined May 2005
Total Posts : 166
   Posted 3/22/2010 4:30 AM (GMT -7)   
I have the same side effect from cimzia. It can range from being a nuisance. To unbearable
diagnosed 13 days following an MMR vaccination at the age of 44
tried Colazal, Pentasa, Immuran, Remicade, Prednisone, Cipro, Flagyl, LDN, Osiris clinical study,  accupuncture, began Cimzia 5/2009

Equestrian Mom
Veteran Member

Date Joined Mar 2008
Total Posts : 3115
   Posted 3/22/2010 6:09 AM (GMT -7)   
numbness can be a potassium deficiency (so are muscle cramps)...have they done labs for it? It is an easy IV to take:)
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 3/22/2010 6:34 AM (GMT -7)   
I agree that there is some blood work, ANA, and vit def needs to be checked, but in the meantime I find that heat helps.

Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

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Veteran Member

Date Joined Aug 2007
Total Posts : 1202
   Posted 3/22/2010 9:44 AM (GMT -7)   
Where is the pain? When I get too anemic my thighs burn constantly. I typically sit on a heating pad. Getting iron infusions stopped the pain... Maybe something to check into. It's been more than once that I've had the pain and the iron infusions have helped... Good luck!
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia, MTX . Dx Osteoporosis 10/08 started Forteo 1/27/09

New Member

Date Joined Mar 2010
Total Posts : 10
   Posted 3/22/2010 4:59 PM (GMT -7)   
I get cramps in my feet. I walk abnormal like I'm crippled and my hips hurt. Heat is the only thing that helps but it doesn't help with my walking. I am thinking of asking my GI dr about it. Right now I am seeing a Bone & Joint for my knee & hips but.... That is a dead end. So I do believe it is crohns related. I have been taking my meds for just a few days & my knees & hip actually feel better. IDK.. but the feeling of your crippling is not fun so any help from any dr is good by me
Diagnosed Feb. 2007 w/Crohn's & Still learning
Meds: Macrodantin, Pentasa, & Hyoscyamine

Regular Member

Date Joined May 2009
Total Posts : 251
   Posted 3/22/2010 6:44 PM (GMT -7)   
I got severe leg pain after prednisone. Still have it, pretty bad..... Its been 10 months now and I've seen two rheumatologists. We all agree its somehow related to the crohns but don't know how to control it. My BMs are pretty much under control. But I still have SEVERE leg pain. To the point of not being able to walk or stop crying without pain meds at times. Its very frustrating. Its like I've traded one problem for another. I've tried sulfasalizine, but was not able to tolerate it GI wise. Also tried neurontin and lyrica but they didn't work. Also, we don't know if the Remicade is making it worse or not, haven't been able to make the connection. Let me know if you find something that helps you. I'm getting pretty desparate.

Prayer247 what meds were you given for the leg pain?
Current meds:  Remicade
Tried:  Prednisone, sulfasalzine, lialda, antibiotics, imuran
28 yr old female w/ crohn's colitis

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