I just wanted to update you all about Cata (12 year old daughter).
She is eating regularly, although I have cut back on complex carbs as much as possible, and she is still supplementing with E028 Splash (3 cartons a day). Anual cost f the formula $3000... I'm working on the insurance covarage. Sure beats the cost of Remicade.
She is doing wonderfully.
Since we started with enteral nutrition she went from 87lbs. to 109lbs. in 3 months. Her energy level is high and has only one normal BM a day.
I've been telling everyone I know about this, and would love to help anyone who wants to try it.