Flaring and can't see my doctor... what should I do?

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Regular Member

Date Joined Dec 2006
Total Posts : 177
   Posted 3/22/2010 2:45 PM (GMT -7)   
I am beyond frustrated with my doctor's office. I have been calling to try to get an appointment with ANY doctor and they are booked out until mid-April! I managed to get an appointment at another clinic (45 min from where I live) for tomorrow and they just called to cancel it, the provider won't be there. The only person I can get on the phone is the patient coordinator, who can do nothing but tell me they're booked and write down my symptoms. I feel as bad as I did pre-diagnosis. Bathroom 10-15 times a day, completely liquid with some blood, a cough from bronchitis that won't go away, and for the past week, fevers every morning around 6 am. Yesterday my temp was 103.7! I tried to go to work this morning, but after seeing one patient (I work in outpatient physical therapy), I had the chills so bad that I couldn't type, and standing for 10 minutes makes it difficult to breathe. My fever was 102 when I got home. I'm on cipro, Humira, entocort, and 6mp. Nothing is helping, and I can't keep missing work every day until I can see a doctor in April!
What can I do??? I left a message for my doctor, but generally they don't return phone calls, the patient coordinator does. Should I go to the ER? I am afraid at the hospital they will just try to throw prednisone at me and send me home. Please let me know if you have any ideas, thanks.

Veteran Member

Date Joined May 2005
Total Posts : 511
   Posted 3/22/2010 3:25 PM (GMT -7)   
WOW I can't believe you are on all that and still flaring. I wish I had some advice. I would say if you are really
that bad then yes go to ER. Pleae keep us posted.

Also what are you eating???? Try going to a complete liquid diet and see if that doesn't slow things up too.
When I'm flaring and can't get into doc I go all liquid chicken broth, etc....
Living with Crohn's Disease since Jan./2000 
I'm a true Crohnie with IBS and Arthrities too. I have Crohn's very mild compared to a lot of Crohn's people.
Meds I have tried:  Too many to list- LOL
Meds currently on:  Tramadol for the pain
                               Cimzia Injections. Just started on 9/30/2009                      
No Surgeries

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 3/22/2010 3:28 PM (GMT -7)   
umm I am no expert but with that kind of fever i would go to the er
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

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All that I am and all that I shall ever be, I owe to my Angel Mother.

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Make sure your suffering has meaning…

Veteran Member

Date Joined Dec 2005
Total Posts : 1768
   Posted 3/22/2010 3:50 PM (GMT -7)   
If you don't go to the ER, I'd walk into your doctor's office and demand to be seen! They won't want someone with a temp that high sitting in their waiting room all day.

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D, Coumadin

Elite Member

Date Joined Jan 2005
Total Posts : 24909
   Posted 3/22/2010 4:21 PM (GMT -7)   
i totally agree n hope you hv either gone to emerg or docs office.....keep us posted..lyn
you should not be working in that capacity with that high of fever imho
also u could hv seizures if temps get too high
get help asap plz
Long Time Member of da Family

Crohns..Fibromyalgia,,Neuropathy...Deaf...Seizures Pyoderma gangrenosum

Co mod for Crohns...Anxiety/Panic and Alzheimers


Post Edited (Howlyncat) : 3/22/2010 5:31:57 PM (GMT-6)

Veteran Member

Date Joined Apr 2006
Total Posts : 1885
   Posted 3/22/2010 4:22 PM (GMT -7)   
I agree with everyone - ER, for sure.

Veteran Member

Date Joined Nov 2007
Total Posts : 4384
   Posted 3/22/2010 4:29 PM (GMT -7)   
Skip the doc and go to the ER. Make sure they test your stool. I had Salmonella a couple of years ago, and everyone thought it was a Crohn's flare and missed the diagnosis for several months while I got sicker and sicker. You need to have your stools tested for C-difficile bacteria, and Salmonella. With a fever that high, something is definitely wrong. You may need to be admitted...don't just pass it off as a Crohn's flare. There may be something else wrong! Keep us posted and good luck
51 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 4 500mg pills per day, Metamucil and colace for constipation, probiotics

Regular Member

Date Joined Dec 2006
Total Posts : 177
   Posted 3/22/2010 6:55 PM (GMT -7)   
Thanks everyone. I'm going to go to the ER tomorrow night. This sounds weird, but I have to go be fitted for my wedding dress tomorrow and I'm getting fined (I mean, "storage fee") every day I put it off. Trying on my dress with a fever sounds so fun... but I'm hoping they can do something for me tomorrow night.

And, to make my day complete, my toilet clogged and I can't find my plunger- haven't used it since I moved in here. Woooonderful.

Forum Moderator

Date Joined Nov 2003
Total Posts : 7122
   Posted 3/22/2010 8:52 PM (GMT -7)   
I can't believe that your primary care doctor is booked out for urgent issues. A fever like yours, with you on immunosuppressing meds, warrants an examination. Most primary physicians leave three or four appts open each day for urgent issues like yours. If this is the type of treatment you are getting, I would be shopping for a new primary care doctor! If you are having difficulty breathing and have that type of fever, you could have pneumonia or other lung problem. Wedding dress storage fees be darned - get yourself to the ER now.
Moderator Crohn's Disease  & Osteoarthritis Forums
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, asthma, severe allergy and a host of other medical problems.

Regular Member

Date Joined Oct 2007
Total Posts : 390
   Posted 3/22/2010 9:19 PM (GMT -7)   
Call your GI and tell them you are losing weight. Tell them you have blood in your stool and you are going to the bathroom with D x times per day. You have to be very specific and graphic unfortunately. Ask the name of the person who is telling you the dr won't see you. Tell them you need to be seen TODAY. Ask them to have the doctor call you back.

That happened to me the first time I was sick; my GI (who up until that point I would only see for routine visits with mild colitis) was on maternity leave and the other drs were booked) - when I finally got in to see the dr (and he put me in the hospital for 2 weeks that afternoon) he told me I should have insisted on coming in to see him. Obviously easier said than done but you really need to insist. Or find another dr who will fit you in when you need to be seen.

If you have a fever though go to the ER. It's serious stuff that needs to be treated sooner rather than later so you don't get really sick. Good luck!!!
33 yr old Female
Crohn's Colitis
DX 12/06
Currently on Remicade, Humira, 55 30 mg Prednisone, Multivitamin, Calcium, Probiotics, Vitamin D, a few other herbal supplements my natureopath has me on.
Eating a Macrobiotic diet, no meat or dairy, trying to cut way back on sugar and white foods.  Trying to focus on a more holistic approach to healing. 

Veteran Member

Date Joined Dec 2009
Total Posts : 681
   Posted 3/22/2010 9:34 PM (GMT -7)   
Your temp is too high to ignore, something serious could be happening and you need to find out what it is. Definately go to the er in the morning when your temp is high. Good luck and keep us informed when you can!
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.

Regular Member

Date Joined Dec 2006
Total Posts : 177
   Posted 3/23/2010 6:33 PM (GMT -7)   
Update... feeling slightly better today, the fever topped out at 101.7 and then went down, stayed below 100 all day! My doctor's office called and I guess the doctor got the message about my symptoms, and they worked me into the schedule for tomorrow morning. I also have a CT scheduled for Thursday. Had they not called me, I was going to go into the ER tonight. My doctor thinks it could be an abscess, so we'll be discussing that among other things. Thanks for the advice!

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 3/24/2010 7:06 AM (GMT -7)   
Good luck sweetie, and keep us posted on the results of your tests. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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